Owen’s Story

Site created on October 11, 2019

Two days ago sweet Owen got admitted to the hospital with vomiting and dehydration. As we know he was diagnosed earlier this year with severe hemophilia. After a seizure yesterday a CT showed somewhere along the way he developed a pretty severe head bleed with midline shift which the doctors believe was from the pressure of vomiting and his bleeding disorder. Yesterday consisted of intubation, central line and art line placement, cooling, brains rest and a bolt to monitor his intracranial pressure. Toward night time his ICP started rising so they performed a craniotomy with decompression. So they removed the clot and it went very well. Owen will have to have a piece of his skull off for a few months to allow for swelling but recovery has started. This morning doctors say the midline shift has improved but there’s some atelectasis in his lungs. We are staying hopeful and looking forward to seeing that cute smile again !!!

Newest Update

Journal entry by Lindsey Kuper

It has been awhile since we have updated Owen’s page- which means life has been somewhat boring for us, and boring is good! 


Owen has been healing well. Today we are at the castle for a repeat CT and MRI to make sure everything is healing properly. As long as everything looks good, we will get the bone flap replaced on Friday! From our understanding, it will be a pretty straight forward procedure. However, it is still a big surgery so we ask for continued prayers! We are so thankful everything has gone according to plan and we can’t wait to get past this and have smooth sailing moving forward. 


Owen was NOT a fan of not being able to eat this morning. Luckily the sweet nurse gave us a stroller so we could walk around (and apparently fall asleep) until it was time to go for scans! 

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