Journal entry by Ashlynn Cegelske —
Long over due update. Since May Otto has been having some unexplained headaches and fevers which has given us quiet a few ER visits. His protocol is an automatic ER visit if he has a fever of 101.5 or more, because of his port. Because of those fevers (mainly) and headaches his primary oncologist decided to leave his port in at his last intrathecal appointment and instead do a bone marrow biopsy again to be sure he wasn't relapsing at the end here. The biopsy came back CLEAR! He still remains cancer free!! 🙌 Otto did his last intrathecal chemo and lumbar puncture on August 13th (see picture). He now just has to finish his oral (pills) chemo until Oct 2nd then he is officially DONE with chemotherapy!!! Oct 8th we will return for his first post treatment appointment those will continue every 2 months for a year, every 6 months for the next year, then every year for ten years after. When we go for his appointment on Oct 8th they will also remove his port. We are so proud of him and SOOOO happy for this journey to becoming to a close. He's the bravest and most optimistic 6 year old we know. We are so proud of how well he handled this hurdle he was thrown. We strongly with out a doubt believe that without God's grace and promises this journey would've never been handled with the optimism it was. We also know we wouldn't of been able to handle this journey without the support from ALL of our family and friends. We feel so humbled by all of your support big or little trust us it all meant the world to us. We are so thankful and blessed you are all in our lives. God bless all of you! 🧡💛