This planner is no longer available. We're actively working on enhancing ways for your friends and family to assist you. In the meantime, feel free to use journals to share your requests for help.

Add Request
Accepted
Export
List
Day
Week
Month
Apr 14-20

This Week

Onyx hasn't added requests yet
Leave a Well Wish to encourage them to add to their planner or ask how you can help.

Latest Site Updates

Journal

So Onyx had a reaction that is common with stem cell transplants which wasnt a bad one for him but  little worse on our end. There is a preservative that they use in the stem cells when given back and it secrets out through the skin and mouth and it smells like cream of corn, it was awful! But thank god that didnt last very long. Onyx is now starting to get his mucositus back which he will have alot vomiting going on with irregular bowel movements, because of the sores that form all down his digestive track. We moved back to 6 West on the 8th at 9:30PM, when they say you have a bed on the floor you are heading to you better grab it because it might not be there the next day and the waiting game starts all over. 

       Since being back on the 6th floor it has been uneventful other then his mucositus, but we are kinda used to that after being through 2 other rounds before, well except for this morning. Onyx decided that he didnt want his NJ tube in his nose anymore and ripped it and was holding it for the nurse when she came in to check on him this morning. This is the third time he has ripped it out so far, and this time they have to do a fluoroscopy to make sure its going into the right area. 

Read the latest Journal Entry

21 Hearts • 12 Comments

SVG_Icons_Back_To_Top
Top