Onyx’s Story

Site created on February 14, 2021

Onyx Michael Redman, precious son to Kris and Morgan, little brother to Jade, was admitted to Boston Children's Hospital on Friday, February 12th, after a day that began with some alarming symptoms for an almost five month old baby.  Morgan first took him to a doctor in Portland, was sent to the emergency room, and within hours Onyx was transported to Boston after a tumor was discovered in his brain at the base of his skull.  The tumor was 6-7 cm (that's about 2.5 inches) and immediate surgery was his best hope.  By late afternoon on Saturday, Onyx was being prepped for surgery to be performed by Dr. Lisa Baird, Director of Neurosurgical Oncology at BCH. Surgery took many hours until 2 am on Sunday morning (Valentine's Day).  Onyx's tumor was largely removed, more than was originally believed could be removed, but some tumor on his brain stem remains. Onyx has a long road ahead of him but there is HOPE. As his health journey continues, this site will allow Morgan and Kris to update everyone all at once while allowing friends and family to offers words of encouragement!

Update: Onyx has been diagnosed with AT/RT (Atypical Teratoid Rhabdoid Tumor) and once he has recovered sufficiently from surgery, will begin chemotherapy. His parents will be spending significant time in Boston away from their home and from work. Please help ease their financial burden by donating to Onyx's GoFundMe account at:

https://www.gofundme.com/f/help-for-the-redmans-beautiful-son?qid=9fa11e10e4e52cf08af2f0085432f0a9

This link can also be found under "Ways to Help" on this page. (NOTE: Caring Bridge donations support the work of Caring Bridge but DO NOT go towards Onyx or his family)

Newest Update

Journal entry by Morgan Redman

After going back to inpatient for a very short time Onyx was sent back to the ICU on April 8, 2021. He was still struggling with a fever, and had trouble coughing up the mucus that was lodged in his throat. This caused him to DESTAT (meaning his HR was high, and Oxygen was low) He need some assistants breathing periodically. He is still receiving the nasal cannula which provides him with a constant flow of Oxygen. Yesterday was a tough day for him, since he was still in a lot of pain from the mucositis, he seemed to be building a tolerance for the hydromorphone (pain med) and the  low dose of Ketamine didn't seem to make a difference at all. When adjusting medications it usually has to go through several different teams to make sure that everyone is on the same page, and to ensure Onyx's safety. unfortunately it can take a lot of time for this process. So Onyx was suffering most of the day, but once his medicines were adjusted, he became comfortable enough to sleep. The Ketamine is used to enhance the Hydromorphone, and it also makes Onyx sleepy so he wont feel the pain. Thank you for all y our continued prayers, Onyx is such a trooper. 

 

#still loving the life we live

#keep it postitive

#Onyx Strong ATRT

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