Onyx’s Story

Site created on February 14, 2021

Onyx Michael Redman, precious son to Kris and Morgan, little brother to Jade, was admitted to Boston Children's Hospital on Friday, February 12th, after a day that began with some alarming symptoms for an almost five month old baby.  Morgan first took him to a doctor in Portland, was sent to the emergency room, and within hours Onyx was transported to Boston after a tumor was discovered in his brain at the base of his skull.  The tumor was 6-7 cm (that's about 2.5 inches) and immediate surgery was his best hope.  By late afternoon on Saturday, Onyx was being prepped for surgery to be performed by Dr. Lisa Baird, Director of Neurosurgical Oncology at BCH. Surgery took many hours until 2 am on Sunday morning (Valentine's Day).  Onyx's tumor was largely removed, more than was originally believed could be removed, but some tumor on his brain stem remains. Onyx has a long road ahead of him but there is HOPE. As his health journey continues, this site will allow Morgan and Kris to update everyone all at once while allowing friends and family to offers words of encouragement!

Update: Onyx has been diagnosed with AT/RT (Atypical Teratoid Rhabdoid Tumor) and once he has recovered sufficiently from surgery, will begin chemotherapy. His parents will be spending significant time in Boston away from their home and from work. Please help ease their financial burden by donating to Onyx's GoFundMe account at:

https://www.gofundme.com/f/help-for-the-redmans-beautiful-son?qid=9fa11e10e4e52cf08af2f0085432f0a9

This link can also be found under "Ways to Help" on this page. (NOTE: Caring Bridge donations support the work of Caring Bridge but DO NOT go towards Onyx or his family)

Newest Update

Journal entry by Morgan Redman

So Onyx had a reaction that is common with stem cell transplants which wasnt a bad one for him but  little worse on our end. There is a preservative that they use in the stem cells when given back and it secrets out through the skin and mouth and it smells like cream of corn, it was awful! But thank god that didnt last very long. Onyx is now starting to get his mucositus back which he will have alot vomiting going on with irregular bowel movements, because of the sores that form all down his digestive track. We moved back to 6 West on the 8th at 9:30PM, when they say you have a bed on the floor you are heading to you better grab it because it might not be there the next day and the waiting game starts all over. 

       Since being back on the 6th floor it has been uneventful other then his mucositus, but we are kinda used to that after being through 2 other rounds before, well except for this morning. Onyx decided that he didnt want his NJ tube in his nose anymore and ripped it and was holding it for the nurse when she came in to check on him this morning. This is the third time he has ripped it out so far, and this time they have to do a fluoroscopy to make sure its going into the right area. 

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