I am Praying for Olivia and your entire family. I remain united with you in prayer and heart. I cannot imagine the agony❣️of this but, I believe in miracles and pray Jesus will make a way for Olivia to be healed for, all our hope is in Thee Jesus and we Trust in You🙏🙏🙏💜✝️💜✨🕊️Love, Prayers and Hope

I have a real heart for helping raise money for research and clinical trials for this disease. I had never heard of Sanfilippo syndrome until I started watching YouTubes of families with children that have this horrible disease. And to think that this disease is caused by just one enzyme missing is just unbelievable. It shows how the human body really needs to work together in sync with all of the organ systems. Please let me know how I can be of assistance. I just read your article in the December 28 issue of the journal times. I contacted the person that wrote the article and haven’t received a reply. I am a very energetic widow that would love to be of assistance since I am retired. Please contact me at cindymadson@hotmail.com or 414-531-5959. Thank you so much and bless your family. Sincerely, Cindy Madson

Beautiful family. May God give you strength. Continue to pray for your family.

Yep! Tears by 4th paragraph! Please know that the info you can share here helps us know how to pray, how to express encouragement to you guys and to lift you up. Your strength and ability to share Olivia’s story and your journey is so amazing and heartwarming! God is giving you the energy, even on the bad days. Trust in Him and His plan and timing….it seems so unfair, but we only see the underside of His tapestry for our life…sin clouds so much🫤
I am praying and will continue to pray…love you and your family and trust that God will carry you through in the days it is hard to stand! Olivia is so blessed to have you! She is a beautiful little girl and her smile will always light my day! ❤️🙏✝️

Praying for all of the light for you guys and sweet Liv! Love you guys ❤️