This planner is no longer available. We're actively working on enhancing ways for your friends and family to assist you. In the meantime, feel free to use journals to share your requests for help.

Add Request
Accepted
Export
List
Day
Week
Month
Apr 14-20

This Week

Olivia hasn't added requests yet
Leave a Well Wish to encourage them to add to their planner or ask how you can help.

Latest Site Updates

Journal

We met with Olivia's wonderful Opthalmologist two weeks ago.  She will need glasses in coming months, and that process will begin when we see him this winter. 
  Olivia is having IVIG #2 today.  She definitely needs it, as she began having a cough and runny nose this week. She will have her next one on November 9th, and then she will switch to weekly sub Q at home.  
  On Monday, Olivia has another appointment with her Opthalmologist, because he wants to see her without eye dilation. Then, we will be heading to UVA to meet with her Neurologists.  Afterwards, we are meeting with the genetic counselor and Olivia's little brother, Myles, will be getting tested to see if he has AT, is unaffected, or is carrier for the gene. 
 Additionally, Olivia is continuing her occupational and physical therapies.  She will now be starting speech therapy as well. 
   We are working on embracing our new normal. While we work on this, we are going to look into some play therapy to better support Olivia. She is showing some signs of stress from all of the appointments and procedures, and we want to help her cope in the best ways possible.

Read the latest Journal Entry

2 Comments

SVG_Icons_Back_To_Top
Top