Nicole’s Story

Site created on September 14, 2022

Our sweet Nicole was officially diagnosed with osteosarcoma today. Starting in August, Nicole's right knee began to hurt. We went to the doctor and she said that it was likely growing pains and to come back in 2 weeks if nothing changed. After 8 days, we went to the emergency room and got an X-ray. The doctor didn't see anything in the x-ray but referred us to an orthopedic specialist due to the oddity of swelling with no injury. 
Two weeks later we met with the orthopedic specialist at our appointment scheduled by ER. This dr then ordered an MRI which was performed just 3 days later (on Labor Day). The very next day (Monday, Sep 5) the doctor shared his concerns after reviewing the results and ordered another MRI (this time with contrast), for Friday, Sep 9, and scheduled a biopsy for Monday, Sep 12, which brings us to today. 
Today the biopsy results were shared with us from a different orthopedic surgeon and then received a phone call from a pediatric oncologist minutes later. This was a hard conversation to have, as he shared about the cancer being high-grade and wanting to start chemo as soon as possible. The oncologist assured us that even though this only occurs in 1 out of 500k people, this is the most common pediatric cancer that they treat and that everything looks standard and will be treated as such, after we get PET and CT body scans to assure it hasn't spread. 
SO.... next steps we are waiting for our case manager to call us to get all of the following appointments set up:- PET & CT scans - put a chest port in to allow easy access for all of the drugs that will be injected into Nicole's body over the next 9 months- start standard chemo that consists of 3 different drugs and expect a calendar that lays out a chemo plan for the next 3 months before surgery. This is just the beginning, but anxious to get it started. The doctor said that we can expect 12 months of intensive treatment

Kaiser has been really amazing so far and very tender and thorough while explaining things to Nicole (and me!). Nicole said that there was a team of EIGHT people in her CT biopsy room. So grateful to have access to good healthcare and so many different specialists. 
I am trusting God because he is ONLY good, ALL THE TIME, even when we don't understand. It looks pretty bleak, otherwise. So I will put my trust in him who promises to work all things (including terrible things!) for the good of those that love him. 
So grateful for all of the prayers and support from family and friends. I can not imagine walking through this without all of you. 
Please know that I want to text and call each and every one of you to give you a personal update, but my fingers and brain just don't have the stamina. I am going to do my best to save all that I have for my girls. 
Stay tuned for more updates... 
XOXOMacKenzie

Newest Update

Journal entry by The Keller Girls Xo

For those that weren't able to come to Nicole's memorial - it was BEAUTIFUL! It was an amazing tribute to my Girl and I know she would have been so happy to see over 500 people there and to hear the words and tributes spoken, especially from her very best friends ❤️. They meant the world to her.  If you would like to watch the service, HERE IS A LINK
 
I have had the greatest pleasure in finding things left behind in Nicole's room, specifically some of her writing.  She really was a deep thinker and feeler.  Before the memorial, I found a playlist that she had set aside and requested for her service. It was such a gift to be able to play the music that she wanted and to include them during the slideshow (Across the Universe, by the Beatles & You and I, by James Taylor). 
 
Just this week, I came across a letter that Nicole wrote to God dated 4/7/23 - Good Friday. 
I will only share the first couple of sentences, but it was such a blessing to me, and I hope it is to you too. She said "Hello Abba! Hello Jesus! Hello my Father. Jai Guru deva, om! (lyrics from Across The Universe) Glory to the Shining Remover of darkness".   Nicole went on to write what an important day Good Friday is and filled three whole pages with thanks to God for the beauty that He surrounds us with, for His goodness and unfailing love, and for His faithfulness through her journey.  On the third page, she noted that it was not only a special day of remembrance of what Jesus did on the cross (for the whole universe!), but that it was also the very last day of her Doxycycline treatment (one of the three IV chemotherapies that she cycled through).  She gave more thanks that she was finally done and for her God-given strength to get through it. 
 
Nicole had no idea that only five months later she would be diagnosed with recurrence, metastatic cancer, let alone know that she would "graduate" to be with Jesus eight months from her journal entry. 
 
I love that my Girl still loved the lyrics "Jai Guru Deva"  (Glory to the Shining Remover of darkness) and wanted them played at her memorial.  Nothing's gonna change my Girls' world of happiness and joy. Not even death.  
 
Nicole is my hero. She will forever inspire me to be the best version of myself and to share the good news of her Heavenly Father.  God is good.  All the time.  Even when we don't understand it.  He is far superior to any earthly father and can be trusted in all circumstances.  My story, your story, our story, God's story is not done, because it is not done until it is 100% good. 
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