Hard to believe it's been over a year since the last post! I'm happy to report that Nick and family are happy and healthy during these crazy times and that he continues to make progress on all fronts, some more than others. The most exciting news is that his vision has improved to the point where he can now see some moving and high contrast objects. While he still needs guidance this has really helped him become more independent in the last few months. Unfortunately his speech therapy took a hit when school switched to online classes and the rehab facility he was attending closed but we did our best to keep him moving in the right direction. He is now able to but 2-3 word sentences together and is gaining a lot of confidence when communicating in general. The main challenge we face currently is getting control of his seizures. We've tried several medications over the last year with mixed results, some having side effects that have forced us to keep trying new solutions. Fingers crossed we can get it figured out soon but overall Nick is doing great!

As I look back at earlier posts on this site it really helps me put things in perspective...here's a few pics from the last year to help you see how much progress he truly has made : ) Hope everyone is staying healthy and sane and thanks again for the contributions and well wishes throughout our journey. We could have never done this without the community support.