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Journal entry by Sarah Jurney

Hello-
We did round two of cyber knife yesterday. Nate is scheduled for 5 treamtents of cyberknife. the first two were just on the kidney.. Friday will be the kidney and the lymph node. Cyber knife is an intense,precise type of radiation.
It has been tough.
Cyber knife has minimal side effects... although Nate went in feeling crappy- so it is hard to know what is residual from treatment and what is...just what has been.
Pretty much we are juggling. The days he can keep food down...although not much.. better than nothing.. back to the day when he can't keep anything down...to being able to control pain.. to not being able to control pain...to not being so tired to being plain exhausted...
So we are trying to balance. Had a couple of good days and yesterday was not so good....he felt drained and frustrated. I can't say I blame him.
lets see what today brings.

As I write this.. I am watching the snow fall. It didn't start that way this morning.. it was just rain in the early light.. and slowly it turned to dropping flakes of white....always a reminder to me that God is close.
Words are never enough to say how much we appreciate all of you.
Love and Blessings
~Sal

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Journal entry by Sarah Jurney

Hello
We did cyber knife today.
It was a long day.. starting with the procedure to place the marker in the one on the lymph node.
We then were able to get treatment on the one on the kidney.
Then a CT on the one with the marker to get accurate sitings for treatment.
They did say it may cause more pain at first and Nate is pretty uncomfortable right now.
He hasn't eaten much today but did keep down what he did eat. thats a start.
He gets tomorrow off.. and then we go back on Wednesday.
Thank you so much for checking in. we appreciate all of the prayers, kind words, and encouragement.

Love and Blessings
~Sal

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Journal entry by Sarah Jurney

Just adding on... we did hear back from the doc and cyber knife is an option for both the lymp node and the kidney. we now wait to hear from them as to when. Today has been long for Nate. He really is having trouble keeping food down. We are going to try some IV fluids tonight and some IV meds for the tummy. moment to moment....

Hello-
I have to start this with a HUGE thank you. We are always so deeply touched by everyones generosity. Truly heartfelt....hawaii just might have to wait..

Nate hasn't been feeling great. He has been pretty run down and struggling with keeping food down or even wanting to eat. He has lost a bit of weight and we did go see the doc today. Texas is not looking like a possiblity. We are waiting to hear back from Cyber Knife..and should know tomorrow if that is an option. We did do scans again today due to his lack of appetite..and wanted to make sure there wasn't anything hidden. The good news is there are no surprises. The not so good is what is there is growing. Just in the few days from the last scans... there is growth. So we are anxiously awaiting to hear tomorrow what can be done.

He is keeping his spirits up.. giving us a hard time every chance he gets...

As the clouds rolled in yesterday.. it kind of set the mood. We lost a friend to cancer last week.. and she was special. The news yesterday of Keli McGregor touches us as well.. kind of makes you reflect....
Life is always so much more than what we see.... faith allows us to process what we do not understand without question. To view the painful surroundings as God sees them and trust all is as it should be. It takes a deep understanding of God to be able to feel this way. The faith to know that regardless of what is going on around you, your heart remains open to God. I don't think it is something one can do consistently. I do believe there are times when you truly have to feel the pain....knowing that God will take it from you when you are ready....my heart aches for the families/friends left behind.  

I will keep you posted with what we find out.
You are all so appreciated.
Love and Blessings...
~Sal



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Journal entry by Sarah Jurney

Surgery went well and I am slowly recovering. Sal thinks I should take my pain killers more often but I think my organs have been through quite a bit and that it is ok to give them a break and tough it out for a little bit. I cant have them failing me when I'm 30. But its not like I dont take them so she really needs to back off. I'm grateful to have a mother that cares so much.
They had scans scheduled yesterday and I expected, we all expected, for the scans to be clear scans and the doctor to say I had 1 to 2 rounds of chemo waiting for me just to be safe and make sure it is all gone. The scans showed that there is a small nodule on the inside of the right lung, on the lymph node just under the lungs, and on a kidney. 'Twas some devastating news to say the least. I had truly felt like it was gone, like I was done. Treatment is unknown. Chemo is not likely to work because I have already had most types of chemo and the cancer is still there. radiation is not likely to work because it is like a one time only thing. I have already had radiation on the spot where the tumors are so the radiation would not have any affect again. We are waiting to hear from the Texas doctors about any more treatment options. It sucks but I am lucky to have the kind of support I do. My parents support me and let me digest it and understand it so I can make the right decision. They just want whats best for me. Jen talks to me and helps me and lets me vent to her and she calms me down. She wants whats best for me as well. It just sucks. But this is the hand I was dealt. I'm thinkin I will need some beach time to think it over though. A new beach though. I am thinking Hawaii. Ive never been there. If not Hawaii I wanna stay at Atlantis in the Bahamas in the rooms that are $20,000 a night. I plan on winning the lottery and I am open to robbing banks. I will beat cancer, but now my focus is on getting to a beach. Then when I get back beating cancer will be my focus.

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Journal entry by Sarah Jurney

Hello-
Just thought I would give a little update.

Nate is doing okay- he is still in pain. Being Nate....he doesn't listen about taking the pain pills to be ahead of the pain.. he has to be stoic, determined or just plain stubborn and take them on his schedule. Yet there is also something to be said about allowing him to be in control. Life is a balance.....

He has been enjoying the Rockies. Made it to the game on Friday.... (thank you!!) and has had watched the other games... 14 innings was a disappointment.... so today was nice!!!

We also did have a docs appt. Just a check up.. they gave us pics of the lung/tumor. WOW!! Kind of graphic- they used these pics in a conference.. and it was 'impressive' if I can use that word. The tumor more or less took over the lung and was 15cm in size. They had a pic of it cut in half to show how the inside was turning to bone.... ouch..
The doc will do scans next week(Thursday) and figure what the next step is. There are a couple different routes of chemo trials and depending on scans depends on options. Recieving treatment from Texas is a possibility..but still have to wait to see for sure.

We are still so very blessed with prayers, and truly thank you. Words just don't say how deeply it is felt. 

Better than a hallelujah
~Sal

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Journal entry by Sarah Jurney

Hello-
Nate has been home and doing okay. He is in pain- to be expected- trying to rest and recover. 

He does have a doc appt on Friday to discuss chemo options and Friday is opening day at Coors Field.  So plenty of rest between now and then. 

All the other kids made it back to school from Spring break and things are settling in to normal. ha ha ha.. is there a normal? 

I heard a new song from Amy Grant that struck me as a defining moment.  It is called "Better Than A Hallelujah"- and as I listened to it and heard her talk about it- it made me realize how just Nate waking up from surgery normal was so..better than a hallelujah... and as we walk this path again with life... it is better than a hallelujah.  The chorus is:
'we pour out our miseries, God just hears a melody, Beautiful the mess we are, the honest cries of breaking hearts...are better than a hallelujah'

It is a real honest song- and just made me so appreciative of life itself- with all it brings. And how very grateful I am for prayer. All of you are such a huge part of Nate's healing with prayers, kind words, healing thoughts, etc- thank you for being better than a hallelujah for us. 

Love and Blessings
~Sal

 

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Journal entry by Sarah Jurney

Woohoo!!!
nate is being released from the hospital today!!

The chest xray looked good- and we are awaiting discharge papers. What a rock star!!

He has been doing well- still pain but managed. He also was asked to sign a release to have some of the tumor researched by a study happening in Switzlerland. The doc here had used pics of the tumor in a conference last week as well. We actually will get to see those and what this looked like. It has been very impressive to docs so far- and hopefully can be useful in finding a cure.

Thank you!!!!
can't wait to go home!!!
Love and Blessings-
~Sal

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Journal entry by Sarah Jurney

Hi-

We are still at the hospital. We had hopes of going home today....

nate had the chest tubes taken out yesterday- that relieved a lot of discomfort.. although still pain/tenderness/sore....he is doing real well recovering...

yet- the chest xray this morning kept us here. Small air leak... so pre-cautionary...
he has been walking the halls.. being onery.. and as he starts to cheat at cards... i know he is feeling better!!! LOL

So- we will see what tomorrow brings.... and I will keep you updated..sorry I didn't update sooner, mom, and had you worried today....:-)

Love and Blessings.....
~Sal



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Journal entry by Sarah Jurney

Hello-
another day... and I forgot to add that the Ramada has been upgraded... nate is on the adult oncology floor which was remodeled- so is a bit nicer than the 8th floor we frequented before! Yet- it is still a hospital!!! :-)

He has had great nurses- and it has been a smooth visit- need to appreciate and feel the blessing in that. His docs brought him birthday cake yesterday too- which was real nice.

We are here for a few more days. Healing takes time. He is working thru the pain and did get up again today for a walk around the hallway. getting used to the chest tubes(he has two) and wanting to be on his own with those and not depend on us to help- hence- one did get knocked over today.... but it is all good now. Not sure where that independent..stubborn.. wanting to do it himself trait came from!!!!! ; )

Dan was able to come visit for awhile. Dave took a day off..LOL.. and Nicole is having fun in Costa Rica. She spent a day at the volcano-and tomorrow heading to the beach to learn to surf. They are all having memorable spring breaks...in their own way!!!

nate is doing really well. We so appreciate all of the prayers- support- kind words- etc- I know we say that every time- but it is so heart felt. Truly- thank you. You get to witness how God works when in these situations- get to feel the love that is purely moments from God, power of prayer, angels amongst us, etc!  WOW!!!!

Love and Blessings to all of you!
~Sal

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Journal entry by Sarah Jurney

Cancer Sucks.

My turn to update.  However, I've been censored from writing some comments Nate has made recently.  Suffice to say, the humor is still there.

Nate continues to progress in his healing.  He's coping with the pain well and he was able to get up and around today and do a couple laps around the floor, trailing machines and tubes behind him.  All the junk food he's eating must be wiring him up pretty good cuz I think he thought it was a race.
He would like to thank everyone for the Happy Birthdays and well-wishes.
They'll take another chest X-Ray tomorrow and hopefully the chest tubes will stop draining so those can come out in the next day or so.  Still no timetable on parole from here but we're taking it one day at a time.
Someone with a sick sense of humor got Nate a T-Shirt that said, "Got Ribs".  We all got a good laugh out of that one, including Nate.  Thanks for that.
Not much more to update right now.  Thanks to everyone for your support and encouragement.

Mark

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Journal entry by Sarah Jurney

Today is Tuesday, June 6,2006

Nate has been doing well. The doctors appointment went well yesterday and Nate was able to go to the movies tonight!! We will go in Friday for the 48 hr outpatient chemo. Then check in on Sunday for the arerial chemo. It will only be for 6 hours this time.

Nate is a fighter!

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Nate’s Story

Site created on June 4, 2006

To get something you never had, you have to do something you never did. When God takes something from your grasp, he's not punishing you, but merely opening your hands to receive something better. The will of God will never take you where the Grace of God will not protect you.

A mind that is stretched by a new experience can never go back to it's old dimensions.-

Oliver Wendell Holmes

It started with Nate complaining of knee pain. He had broken his right ankle playing basebktball and the doc thought it was overcompensating from having a cast. After following docs orders on ice, Aleve, and P/T exercises we went to a knee doctor. Nate was diagnosed with bone cancer on April 25, 2006. He went through four rounds of IV and IA chemotherapy . He has had surgery on July 19,2006. He has finished four different rounds of IV chemo since then and is going through physical therapy. He is a fighter! He has been working hard on getting his strength back.

Nate has done great. He played ball this past spring(07)- and went to Costa Rica in the summer. The scans for Sept were not so great. They found cancer nodules on his lungs.He has been on the immunity booster treatment since then and will have yet another surgery Nov 28th to remove a cancerous nodule from his lung. He is attitude is great and we will just move forward to get this all done. They did add a chemo agent to his treatment. It is still experimental. We now have started the new year with a clot from his port. The port is out and he will do shots to help thin the blood and dissolve the clot. As of Feb 08 he decided to bypass any more experimental treatments. The nodules have stil been growing despite feeling like he has the flu every weekend. So he just wants to have fun for his senior year, play ball and graduate. Then he will look at surgery or other options.

Nate had the surgery on June 6th. He did not recover well. they did take out all the cancer and the last scans showed know cancer nodules in his lungs. But- he has not been fully himself. They cannot determine if it is permanent. It is mostly memory issues but the neurological testing showed slowness in processing as well.
This May, they found the cancer had returned.

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