Journal entry by michelle wallace —
Hello . Thank you for taking your time to read my story .
It all started in May of 2016 , I was diagnosed after an ultrasound , and a core biopsy with invasive lobular breast cancer .
Within 2 months I had a mastectomy. I had several genetic tests and it was determined since I had no lymph node involvement and with the results of the pathology report , I was stage 1 and would begin Tamoxifen for 5 years .
About 2 weeks after my surgery I contracted cdiff and was placed on antibiotics . I had a horrible time with them and the bacteria left me with permanent damage to my intestines . My left rib cage also had some severe pain . I brought it to my oncologists attention and they did a CT scan only to find nothing but a rib fracture .
The pain continued for months and months and into a couple of years . The same constant pain remained but scans showing no change in the fracture . I was told there was 0 % chance that this had spread and that my intestinal infection and anxiety were contributing to my pain .
After 2 years of this and not being able to eat , I was living on bone broth and baby food jars , I insisted on a biopsy . I was sent to a interventional radiologist who drilled into my spine to take a sample of my bone tissue . It was confirmed I had stage 4 metastatic lobular invasive breast cancer to the bone . I was not crazy and this was not anxiety .
My medications needed to be changed at this time . An aromitase inhibitor and a targeted chemo Ibrance were prescribed .
I had no idea what to expect . I experience still to this day a lot of nausea and horrific joint pain .
Needless to say , I felt mad, sad, and almost just at a loss of words . I became horribly depressed and developed a ton of anxiety as I was told this is terminal with no cure . All I could think about is how I would tell my than 12 year old daughter who I am a single parent to , the devastating news . My prognosis 3-5 years ...
I’m still devastated by those haunting words .
I have treatments every month as well as scans, tests , blood work and at any given moment things can change .
I switched oncologists and this Dr is much more up to date with treatments . Since the change in Drs I have had radiation and a surgery to remove my ovaries ivervthe last couple of months .
My treatment remains the same , for now . The goal is to keep it there as long as possible . I have scars all over , have gained weight , experience inflammation and just feel like I don’t know this person anymore . It has affected my family very much . My daughter struggles with nitemares of me dying . It’s awful .
I miss my life , my work , my normalcy . Don’t know if I will be able to practice dentistry again . My joints are just too inflamed and I’m so tired .
Unfortunately cancer does not discriminate . it’s highly unpredictable and it’s expenses are as well . The bills just pile up and the uncertainty of it all weighs so heavily . I have been placed on disability without a set in stone date to return .
I want to be here for my daughter . To see her graduate highschool . I want to see her go to college, Mature into a beautiful woman , Get married and see my grandchildren someday .
I need my treatment every month in order to make that happen . And disability doesn’t cut it as far as covering the expenses .
I have Kaiser but it does not pay for everything . We all have bills and worries , I get that , I just have a little more than I can handle .
I have faith and am always hopeful for a long life and even getting cured . Miracles happen every day , I’d love to be one .
I’m so grateful to anyone and to any amount that can be donated to help my family and I get through this devastating disease . It has turned my world up side down to say the least .
It all started in May of 2016 , I was diagnosed after an ultrasound , and a core biopsy with invasive lobular breast cancer .
Within 2 months I had a mastectomy. I had several genetic tests and it was determined since I had no lymph node involvement and with the results of the pathology report , I was stage 1 and would begin Tamoxifen for 5 years .
About 2 weeks after my surgery I contracted cdiff and was placed on antibiotics . I had a horrible time with them and the bacteria left me with permanent damage to my intestines . My left rib cage also had some severe pain . I brought it to my oncologists attention and they did a CT scan only to find nothing but a rib fracture .
The pain continued for months and months and into a couple of years . The same constant pain remained but scans showing no change in the fracture . I was told there was 0 % chance that this had spread and that my intestinal infection and anxiety were contributing to my pain .
After 2 years of this and not being able to eat , I was living on bone broth and baby food jars , I insisted on a biopsy . I was sent to a interventional radiologist who drilled into my spine to take a sample of my bone tissue . It was confirmed I had stage 4 metastatic lobular invasive breast cancer to the bone . I was not crazy and this was not anxiety .
My medications needed to be changed at this time . An aromitase inhibitor and a targeted chemo Ibrance were prescribed .
I had no idea what to expect . I experience still to this day a lot of nausea and horrific joint pain .
Needless to say , I felt mad, sad, and almost just at a loss of words . I became horribly depressed and developed a ton of anxiety as I was told this is terminal with no cure . All I could think about is how I would tell my than 12 year old daughter who I am a single parent to , the devastating news . My prognosis 3-5 years ...
I’m still devastated by those haunting words .
I have treatments every month as well as scans, tests , blood work and at any given moment things can change .
I switched oncologists and this Dr is much more up to date with treatments . Since the change in Drs I have had radiation and a surgery to remove my ovaries ivervthe last couple of months .
My treatment remains the same , for now . The goal is to keep it there as long as possible . I have scars all over , have gained weight , experience inflammation and just feel like I don’t know this person anymore . It has affected my family very much . My daughter struggles with nitemares of me dying . It’s awful .
I miss my life , my work , my normalcy . Don’t know if I will be able to practice dentistry again . My joints are just too inflamed and I’m so tired .
Unfortunately cancer does not discriminate . it’s highly unpredictable and it’s expenses are as well . The bills just pile up and the uncertainty of it all weighs so heavily . I have been placed on disability without a set in stone date to return .
I want to be here for my daughter . To see her graduate highschool . I want to see her go to college, Mature into a beautiful woman , Get married and see my grandchildren someday .
I need my treatment every month in order to make that happen . And disability doesn’t cut it as far as covering the expenses .
I have Kaiser but it does not pay for everything . We all have bills and worries , I get that , I just have a little more than I can handle .
I have faith and am always hopeful for a long life and even getting cured . Miracles happen every day , I’d love to be one .
I’m so grateful to anyone and to any amount that can be donated to help my family and I get through this devastating disease . It has turned my world up side down to say the least .
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