One year ago I was on a plane to Atlanta to see Dr.Carrick. I am still so grateful to those who helped support my fundraiser and make this possible. I wanted to share an update on how muchbetter I have been over the past year. First going back: In 2010- nearly 5 years ago- I suddenly became dizzy and progressively lost control of my body. My bouncing eye movements, muscle jerks and balance trouble turned out to be a rare autoimmune neurological disorder: Opsoclonus Myoclonus Syndrome (OMS). I spent years fighting insurance for treatments, seeing countless doctors and spending hours in ERs, hospitals and infusion clinics every week. Even with all of that I was barely my old self. Seeing Dr. Carrick at Carrick Brain Centers changed my life.
I have spent the last year enjoying life with my family and friends and being the active Colorado girl my husband married! This year I have been backpacking, bike riding, skiing and more all without being dizzy, off balance, or paying theprice of “overdoing it”. I will be forever grateful to all those doctors who have helped me in this journey. Dr.Glen Zielinski identified my condition early on and supported me as numerous Neurologists told me I was stressed and making it up. I wouldn’t have graduated chiropractic school without your support Glen! Dr. Steadman helped me in so many ways including putting up with me withdrawing from pain meds and anti-seizure meds after I had meningitis! Of course, thanks to my wonderful, supportive husband and my parents and brother. I love you guys.
Today, I am practically symptom free. I continue to do the brain exercises Dr. Carrick gave me at CBC. I still do IVIG and Rituxan but decreased the doses and tolerate without any side effects. I am off all other medications. I have not been to the ER in a year, which is incredible, given the fact that it seemed to be a frequent place I visited! Just this winter I experienced the flu without it sending me into a downward spiraling relapse requiring months of adjusting my treatment doses. Who would have thought that getting the flu would be a milestone! I am so grateful to be at a point where OMS does not control me, I am loving life and enjoying God’s wonderful world!