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May
19
2018

Untitled

Mike texted at 8:50 AM~
M's win 5-4. 5 run 7th! and 1hr until discharge!

May
16
2018

ETA

ETA~
Saturday May 19th❤️
28 days post tumor diagnosis;
24 days post-op
When modern medicine is left to do what it’s meant to do✝️
Thank God for the ER doctor that decided to do one more test;
for the surgeons who expertly and steadily removed it;
for the ICU team that cared for him;
for the Rehab team at the UW who gently and firmly, started his road to recovery;
and to The Village who prayed, supported and breathed sighs of relief with our Family ~
Praise God from whom all Blessings Flow

May
15
2018

Bits and Pieces

He has been working with his speech therapist, doing a binder/diary of his treatment ~ this also works on his memory & writing.

Last week he scored 97% on his speech test

but didn’t do so well on his math this morning.

 

He says his brain is “switched on”

 

He’s lost a lot of weight but his appetite is growing

Richard brought him 3” piece of sub sandwich, small barbecue chips, & small lemonade. 

Couple bites and no more!

But he devoured lunch fruit & lemonade

 

We are looking at a 3 - 6 month physical recovery period but likely closer to 3.

They’re going to prescribe a walker for him. His endurance is much better and he’s getting stronger.

 

He’s been using cpap at night.

Still bouts of nausea & coughing, causing headaches, but not like they were.

 

He’ll need to use a chair with no casters in his computer room, Richard had done some rearranging of the furniture to make it easier to maneuver.

 

Will know more tomorrow after his Therapy update meeting if Saturday the 19th is his discharge date

Thank You for all the continued Prayers and Support ~ 
Michael, Richard, Norita

May
10
2018

I had to pick the right t-shirt

May
9
2018

"He's eager..."

The transfer from Harborview to U of WA went smoothly.  Intensive Inpatient Rehab ~ when I got there at 1:30 they had him working on stairs!  He wolfed down his lunch and was exhausted.
The therapists are still in the assessing stage and will be meeting additional therapists tomorrow. 
Being overly cautious, he was told he could be there as long as a month, but they also told me
he's eager.  
He does NOT want to there any longer than he needs to. I told him it's just the first day, be patient with the patient and the process.  
The hiccups are pretty bad, even when he sleeps.
I asked him how his "head" is with all that has happened and going on, his approach.
"Being pragmatic" was his response.

May
8
2018

Rehab RUS

University Of WA INPATIENT REHAB
Room N 836

May
6
2018

👍🏼

Lumbar successful; pressure good at 14😴

May
6
2018

Lumbar / CT scan

They tried for an hour to do a lumbar to get a spinal fluid to check for elevated cranial pressure (normal is 20.) Couldn’t complete it so will try again in half an hour🙁. If they can’t get one this afternoon they will have to do it tomorrow and it HAS to be done before transferring to Inpatient Rehab (UW)

Right eye still shaky, speech still slurred, but appetite roaring back.

The mid-spine tumor is on the bone but so small they may not be able to obtain a biopsy. They will keep an eye on the “developing anomaly” in the upcoming months.