Mia’s Story

Site created on April 21, 2019

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Newest Update

Journal entry by TJ Stark

October 14,2006... little Mia was born with port wine stain all over her little body.  Her pediatrician recommended her parents(my son, Sam) take her to a cardiologist because she believed she had Keppel Tranauney syndrome. My son did not follow through, nor did mom and i was told nothing about it until i obtained guardianship of Mia when she was 7. Her father wad doing K2 (synthetic marijuana) and it killed him. 
Unfortunately, going through a specialist, insurance won't pay for a special vein mapping MRI, so we're don't know how her insides are. 
I do know that she had extra tissue getting on her left buttock and thigh and her upper and lower back. 
This growth is fairly noticeable... especially in bathing suits... starting to bother her. 
What I'm afraid of is this... she also had scoliosis and is having corrective surgery this summer... I'm praying that her vasculature system is ok for this.  
Has anyone had issues like this? I'd so.... PLEASE respond here. 
Thank you
TJ and Mia
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