Mia’s Story

Site created on April 21, 2019

Welcome to our CaringBridge website. We are using it to keep family and friends updated in one place. We appreciate your support and words of hope and encouragement. Thank you for visiting.

Newest Update

Journal entry by TJ Stark

October 14,2006... little Mia was born with port wine stain all over her little body.  Her pediatrician recommended her parents(my son, Sam) take her to a cardiologist because she believed she had Keppel Tranauney syndrome. My son did not follow through, nor did mom and i was told nothing about it until i obtained guardianship of Mia when she was 7. Her father wad doing K2 (synthetic marijuana) and it killed him. 
Unfortunately, going through a specialist, insurance won't pay for a special vein mapping MRI, so we're don't know how her insides are. 
I do know that she had extra tissue getting on her left buttock and thigh and her upper and lower back. 
This growth is fairly noticeable... especially in bathing suits... starting to bother her. 
What I'm afraid of is this... she also had scoliosis and is having corrective surgery this summer... I'm praying that her vasculature system is ok for this.  
Has anyone had issues like this? I'd so.... PLEASE respond here. 
Thank you
TJ and Mia
Patients and caregivers love hearing from you; add a comment to show your support.

Comments Hide comments

Help Mia Stay Connected to Family and Friends

A $30 donation to CaringBridge powers Mia's site for one month. Will you make a gift to help ensure that this site stays online for them and for you?

Show Your Support

See the Ways to Help page to get even more involved.

SVG_Icons_Back_To_Top
Top