Had Miss Mia back up to the doctor yesterday. Poor kiddo just cant catch a break. Less then a year ago she had an internal ear graph done to repair a hole that had not closed when her tubes fell out. Then she was diagnosed with scoliosis at a 42° curve. Then the Chiari Malformation with Syringomyelia, (a very large syrinx in her spine). A month and a half ago she had her Chiari Malformation decompression surgery. Since then we have dealt with a cerebrospinal fluid leak, a respiratory infection, and an abscessed tooth that had to be pulled. Yesterday she had to be put back on antibiotics as well as antibiotic/steroid ear drops. We go back in two weeks to be sure her ear didn't rupture again. Then August we meet with her pediatric neurosurgeon and redo her MRI to see if the surgery worked and her Chiari and Syringomyelia is better. Hoping it did so that she does not have to redo the decompression surgery or have a spinal shunt. In September we will address her scoliosis with her pediatric orthopedist. It is too high to be braced, so another surgery is a probability. I never want to rush time, but looking forward to getting through this year.
My little Mia is still all smiles though 💜