Journal

Journal entry by Meghan McGinnis

Forgot the most important update! Some of you know this, but we finally received a response from the financial department at duke after an agonizing 5 months of waiting. They are covering 100% of my entire medical balance. As I continue to say I am so thankful for Duke! 


❤️❤️❤️

Journal entry by Meghan McGinnis

Whew okay. Lots to catch up on. Didn't think I'd be updating til after surgery but not the case.

Few weeks ago I met with my anesthesia team and my gynecology surgeon to prep and inform me risks etc blah blah. They feel strongly that since Harold is on the tip of my uterus they want to just go ahead and remove. Also since they fried my ovaries in radiation they want to remove those as well since it could put me at risk for ovarian cancer later on down the road. My surgeons feel strongly that we can remove all of Harold and give me a complete cancer free life. Sometime Tuesday we will receive the call what time surgery will be on the following day. My brother, Joe and Sara will be with me, who is basically my second mother, since mom and dad will be overseas enjoying the wonders of Scotland. Which is partly why I wanted an earlier surgery, I wanted mom with me. So selfish I know lol. Surgery will be around 4 hours unless my radiologist feels radiation is need, in which it will be pushed to 6 hours. Radiation will be performed on the table if the my oncology surgeon can't get a clean margin but will  not be performed if my radiologist feels it is unsafe due to possible nerve damage. So many ifs and ands, definitely overwhelming.

Also had an MRI performed Monday due to some alarming pain becoming increasingly more but was happy to hear it is not cancer related and Harold is still shrinking! Less than one week out! I am so excited to change from a warrior to a survivor!

Journal entry by Meghan McGinnis

Some of you might know, if we are Facebook friends, I got my birthday wish. Unfortunately we were not told it would have to be a total of 8 week of waiting so I can not have it til the end of September.

Surgery will be what we figured though, removal of Harold who has now thankfully shrunk to the size of a pea believe it or not! Another lovely thing we were told is my surgery will also include a hysterectomy as Harold decided I didn’t need mine and killed some of my uterus. Jerk. Oh well I always hated that part of being a woman anyways 😂 Little unhappy with Duke at the moment as this piece of information would have been nice to know about 4 weeks ago as that’s kinda a big thing lol!

Will also have to have another surgery in January to reverse my ileostomy so I’m stuck with this damn this another 4 months. All in all was great appointment just feeling a little blindsided but my oncologist and radiologist stayed true to their word and got me to surgery! 

Its been a long journey but finally we are in the the last minutes of the 4th quarter of the game 🙌🏽 

I did it. I kicked Harold’s ass!

💜💜💜

Journal entry by Meghan McGinnis

Had the big scan yesterday everything went smoothly and now we wait for results on Tuesday. Seriously longest wait ever. Can’t complain too much though, I’ve been enjoying the cool mornings and cool evenings. Fall is coming ❤️❤️🍁🍂🍁

Been receiving some messages about where to send donations and cards etc, which I absolutely love getting cards to add to my card wall, you can send to moms house at 95 Fox Creek Drive Fletcher NC 28732.

Also do not feel you have to use the gofundme if you wish to donate, as several have expressed some concerns about that. You can send to the address above just like cards. As always everything received is an great help and received with enormous gratitude. Lastly as an act of paying it forward, when I get back on me feet, I will be making a donation of my time to the duke cancer center as a volunteer. It only seems right that as they have done so much for me. 

Fingers crossed for good news Tuesday. Still pushing for a birthday surgery lol which most people don’t wish for but I’m wishing and praying. If not heaven help my doctors JK lol! I remain in good spirits and seems to be gaining strength daily. Lost a few pounds as my taste buds have seem to have disappeared again though.

Til Tuesday friends ❤️

Journal entry by Meghan McGinnis

Well I’ve made it through a surgery, 7 chemos and 28 days of radiation and officially in part 3 of my journey. I didn’t have to do my last chemo but I made the tough choice which deep down I knew was the right one and we finished strong! We celebrated by getting apple doughnuts from Granddads and eating at Mama Dips on my last night in Durham.

I even got to visit a very special friend Mrs.Kathy Wooten during my weekly check-in who is going through the same battle I am. She is a close family friend who has made the journey to Duke and even has the same doctor as me! Please send her good thoughts and prayers as her battle is still not over and has more chemo ahead of her. 

Radiation has made me very tired this last week as they said it would and after a battle with severe dehydration I now get to fight stomach pain as of today. The bed has been my safe haven for the last 5 days. But I did it. Hard to believe it’s been 6 months but time does fly even when you’re not having fun.

Dr’s have said unfortunately surgery probably will be the week after my birthday as they was to wait and give it time to shrink and even made mention of doing a dose of radiation on the table at time of surgery. But all depends on scans. 

This will be the last update til September 3rd when we go back to read the results of my August 30th scan 🤞🏽🤞🏽🤞🏽 As always thank you dear friends ❤️

Journal entry by Meghan McGinnis

Single digits!

8 days of radiation left! Started with 28 and now we are in the home stretch. To add to the excitement of radiation my lovely body has decided this would be the perfect time to have my first UTI. Seriously. If you have never had one consider yourself lucky. But powering through the pain and doing my best to smile an keep my spirits up. As I sit here at Duke for my weekly check-ins, I am inspired as I see so many people and hear their stories. As I continue to say thank you thank you friends. 

Last week we had to push Oxaliplatin even though I put up an awful protest but to compromise they are going to discuss moving my 6 week waiting period up to scan the last week of August and maybe surgery for my birthday. Never thought id be asking for that as a birthday present. Also been have issues with nausea and they forgot to call in a different one during last weeks chemo infusion so I proceeded to have a lovely fit in the car while driving. That was fun. NOT. Doctors are also not happy since I've basically given up eating and drinking again but we were told my appetite would change. 8 weeks to go til this is all over. Seems like yesterday this journey was just beginning.  

til next time faithful followers!

Journal entry by Meghan McGinnis

Greetings!

Quick catch up on my journey: Radiation has started with an end date of August 2nd. 19 more treatments 🙌🏽🙌🏽

Slight discomfort but nothing this girl can’t handle thanks to aquaphor! Lymphnode has also shrunk tremendously which we are thankfully for! Also has a dose of proton therapy to help in the shrinking.

Hard to believe part 2 of this journey is quickly coming to a end, much quicker than chemo. 

Hope everyone had a safe and happy 4th of July!

❤️❤️


New blog up also!

https://meghanlucia.wordpress.com/

Journal entry by Meghan McGinnis

Positive.

Cancer has indeed spread to the left lower lymphnode. Can’t this damn thing die already 😩 I am not a patient woman as my mother and joe will attest. It’s like Harold is having a competition with all my other cells to prove he should survive. I imagine something like the hunger games only with the end being different and Harold dying.

Treatment is pretty much the same except larger area go be treated but day one down 34 to go!

❤️❤️

Journal entry by Meghan McGinnis

When your doctor comes in and says “why do you like to stress me out?” 😂

Hoping to get started tomorrow with radiation and more chemo. Thankfully it’s just a pill I will take twice a day and no bag or 3 hours drip! Did a trial run today and it felt like the first day of school. Sweaty palms and nervousness! 

Bad news though yet again. Had to have a lymphnode biopsy told due to possible spreading and pain has intensified even more now down my left leg.

Official last day of part 3 aka radiation is August 2nd! Let the countdown begin!

❤️❤️❤️

Journal entry by Meghan McGinnis

Thank you to everyone for checking in with phone calls messages or dropping by for a visit! 

If you have any photos you’d like to share please feel free to send to my phone or email and I’ll upload them here. 

In times like this it helps to remember the good times and laughter created by friends.
Meghan’s Story

Site created on February 23, 2019

My beautiful daughter is 30 years old and she has colorectal cancer. She loves life, her family, her boyfriend, her job! She works out, pays her taxes, is kind to animals, and works very hard just as she was taught. These were some of the words that she tearfully said to me when she realized that she was indeed very ill and she was coming to the realization that she might possibly have cancer. What do you say to this wonderful lady that you so lovingly reared to love God and believe in what is good and right? Everything is not alright. Our world has gone very wrong!
This Caringbridge site will be penned by Meghan and me, her mama, Debbie. Our journey in the story of this horrid nightmare is just beginning. 
On February 15, 2019 Meghan was scheduled for a colonoscopy. This procedure was finally happening after about six weeks since the consultation with a GI. Being 30 years old, I'm not really sure that her symptoms were taken seriously by this specialist. The laborious pain grew and mounted within her, but she so hopefully and bravely yearned for this procedure to end the waiting and the pain with an answer that might give a glimmer of hope that everything would be okay after this grueling task was completed. Instead, the colonoscopy was aborted quickly as a tumor was blocking the scope's entry just beyond the rectum. She was met by medical staff with concerned faces relaying news that her brain processed, but that her heart could not fathom. Four days later, the words were spoken, CANCER. And she voiced the words, 'I'm 30 and I have cancer.' 
We are ready for the fight. That tumor has been dubbed 'Harold' and he is NOT welcome. Be gone, Harold!!!!

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