If you have any photos you’d like to share please feel free to send to my phone or email and I’ll upload them here.
In times like this it helps to remember the good times and laughter created by friends.
Alright! Whew lots to update on.
Long story short I earned myself 2 6+day stays in the hospital recently due to my rectovaginal fistula output. We hopefully, fingers crossed, have it under control and are monitoring the output daily. I am currently still on TPN (22 days now of non eating) and a drug called octreotide, might need to check the spelling on that. But we are staying strong in hopes this will heal the fistula as much as it can. It will not fully heal and my never full heal but the goal is to shrink it as much as possible. Although 2mm is an awfully small hole to shrink it takes months. I also am being treating for anxiety/ptsd due to this wonderful fistula because it was so bad I couldn’t even get out of bed and I now panic at the slight thing wrong.
I met with my surgeon and he was willing to due an exploratory surgery but after sleeping on it I opted against it knowing I could do more harm than good.
Huge shout out to all my nurses this past week and days I was in the hospital! They were all amazing and bummed to see me for a second stay literally one day after I was discharged but all part of the journey.
As always friend I ask for continued prayers and more prayers. These past few weeks have been so stressful and disheartening it’s been a challenge.
Site created on February 23, 2019
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