Matt’s Story

Site created on August 6, 2018

A podcast I listened to recently was about reimagining crisis and our response to it. This is the story of my crisis and a window into our response.

On July 23rd, 2018, Elisa’s and my 25th wedding anniversary, I was diagnosed with non-Hodgkins lymphoma, subtype ENKTL, nasal.

We’ve quickly built a great team of family, friends, and medical professionals; are winding up required testing; and moving rapidly in to treatment by mid-August 2018. Hope runs high for a full cure. Thanks for being part of the support that means everything to us.

We'll post updates here as frequently as possible. We won't be sharing on social media, and we ask that you do the same.

Newest Update

Journal entry by Matt Huston

Hello all - 

Been a while since I posted a cancer update.

Friday March 13th, as the state of Washington was shutting down, I went to a spookily empty University of Washington Medical Center and my radiation oncologist, Dr. Liao and his PA David Hudock, pronounced me to have "perfect nostrils," which is a good thing if you've had a very aggressive cancer in one of those nostrils. (Okay, it's funny too: I like saying I have "perfect nostrils.") I continue to enjoy watching the scope traverse the inner caverns of my nose. Lots of real estate in there...

This past Monday, May 18th, I had a telemed appointment with Dr. Shustov, my oncologist -- and the news was very good. My blood work is great, so I continue to be clear of cancer since October 2018, when treatment ended.

Current plan is that I'll follow up with Dr. Shustov, and Dr. Liao, every 6 months for ~3 more years. Both docs stopped stopped doing scans after good news on scans + bloodwork in December 2019. Scans at this point are more likely than not to show a false-positive -- and if the lymphoma's going to come back, the blood work will tell.

Long-term issues are possible, so I have to remain vigilant for a secondary cancer, tooth and gum problems, and nasal issues. No worries in any of those areas right now.

And my health is good otherwise: I'm eating well, exercising regularly, enjoying my online learning job at the University of Washington, and spending lots of time with family and friends (thank you Zoom). Also driving a lot less than I used to ;)

How are you all doing?
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