Three steps forward, two steps back.....
Mark was pretty alert when Kris got there early this morning and stayed that way for a few hours. The doctor informed her that Mark has another pneumothorax (collapsed lung) on the right so they are going to drain that this afternoon. The infection/pneumonia that they saw on the x-ray the other day looks much better. Overall he looks better that he has in the last few days.
A few weeks ago I remember looking forward to now and thinking how much time we had for Mark to get better before his birthday. We will be celebrating this one in the hospital and that is okay, because he has been so strong! So tomorrow, day 54 we will celebrate Mark turning 48 and just be thankful we can be with him.
The doctors reiterated today how great Mark is doing. He was off the ventilator for about an hour today which impressed everyone. They are talking about moving him on Monday, to Muskegon for acute care where he can be weaned off of the ventilator and focus on some specialized treatments then to sub acute care for more intense physical therapy needs.
Mark is still going through what they call the delirium phase which has him quite agitated at times. Sometimes he is there mentally and you can see that he is able to process what you are saying to him and there are times he isn't. Last night when we were there we were reading his lips and we are quite sure he said he wanted to go home. He kept trying to use us to pull himself up to get out of bed.
They've talked about trying to cap the trach so he will be able to talk. That might happen sometime this weekend.
They found histoplasmosis in his urine yesterday, so they are going to start treating him for it. Histoplasmosis is an infection caused by breathing in spores of a fungus often found in bird and bat droppings. Most people with histoplasmosis never develop symptoms and aren't aware they're infected. But for some people — primarily infants and those with compromised immune systems — histoplasmosis can be serious.
The doctor said Mark is making great strides. He had physical therapy this morning and smiled through the whole thing. The therapist said it was nice to see as most people aren't happy to see them. Mark is still going through the delirium stage as they continue to decrease sedation and pain meds slowly.
They had to put the larger tube back in his nose as he was having a buildup of stomach acid and it caused him to vomit. They think the original tube must have been plugged because nothing was coming out of it.
Another good update for today!! Mom, Carla and I will be visiting him later today so I may post another update later on. He made me cry when he squeezed my hand Tuesday, so we will see what he does to make me cry happy tears today.
Kris said Mark had an OK night last night, he was awake but not really coherent and was lifting his right hand toward the feeding tube and tracheotomy tube so they had to put wrist restraints on him. For those of you that know Mark, you can imagine how happy he must have been! She told the doctors this morning that Mark may just be trying to feel the feeding tube and other larger draining tube that is in his nose as well as the trach and is trying to process it. Kris has explained things to him but he is still kind of in and out of it and may not fully understand. The doctor said that he could probably take out the larger tube but the feeding tube has to stay in.
She also told the doctors that when Mark gets agitated exercise seems to help calm him so he is going to have physical therapy come everyday instead of every other.
The respiratory therapist turned down the ventilator setting so Mark has to initiate his own breath. Hopefully he will be able to keep numbers up today! This would be amazing progress for him.
Thank you all for the prayers, love and support!
Site created on February 26, 2018
Send me emails on supporting a friend in tough times through stories, articles, videos and more.