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March
6
2021

March 06, 2021

Hello all!!!

I’m out front of NYU waiting for Marc to be wheeled down to go HOME!!!!!! We have a laundry list of meds and appointments and precautions but he has been released for outpatient!
We have a very long haul in front of us but as I was about to head down to get the car, Marc said: “I’ve gotta do this.. I tell the boys to push through in wrestling and BJJ.. I’ve got to too.”
So starts a new challenge! 
Again... thank you all so much for absolutely EVERYTHING. Marc and I cannot believe the outpouring of love and support. It means absolutely everything to us. ❤️❤️❤️❤️❤️

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March
4
2021

March 03, 2021

Hi!
We spoke with Dr. Sen (neurosurgeon Superman!) and he said the post-op MRI looked fantastic. It just healing/ recovery monitoring from here on and follow ups with ENT, Endocrinologists, and recheck MRIs down the road to monitor. Right now he has to be very careful about any negative pressure in the sinus cavities - must cough/sneeze mouth open (Covid-be-damned! And no straining!)
As far as his UC, he is still very symptomatic so they decided to give him his second Remicade dose few days early. He weighed in at 145lbs today even though he is eating (I now out weigh him by nearly 15lbs 😱😳!!)  
Due to the fact he is on extremely high dose steroids, he has had to be given insulin to counter the blood glucose-raising side effects. Post operatively, slight thrombocytopenia has developed so he will also be getting platelet transfusion to get his levels where the should be. 
All in all, we are a step in the right direction with the removal of the Adenoma and now we must get his UC under control! 

Once again, thank you thank you thank you!!
❤️🙏🏻❤️🙏🏻❤️🙏🏻❤️🙏🏻❤️

March
2
2021

March 02, 2021

He’s awake and surgery went fantastic!! He will be spending approximately 2 days in Neuro ICU and the GI will have to evaluate him further and set up a plan of action for his  current UC status. 
Thank you all sooooooooooooo much!! Will keep you all posted!! 
❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️
March
2
2021

March 02, 2021

Today is the day! Dr. Sen came in last night to go over everything for Surgery today. Time is set for 1pm and is estimated to run 4-6 hours. He will be moved to Neuro ICU afterwards and stay there for a few days. The bloodwork showed that the Adenoma is also now hindering pituitary function and so he will have to be supplemented to make up the deficit. 
He had a sigmoidoscopy yesterday to see if the medication is making a difference and they found that the lower part of his colon has improved to moderate UC, however the rest is still severe/unchanged. They advised us to stay the current course of medical treatment (steroids/antispasmodic meds/Remicade) and he will be due for his next booster infusion of Remicade at the end of the week. 
I will update as soon as he comes out of surgery!!
Thank you all so much for all the well wishes, it means so much to us. ❤️🙏🏻❤️🙏🏻❤️
All our love,

Marc & Wendy
February
28
2021

February 28, 2021

Well.. we’ve arrived at NYU! Ambulance ride was uneventful (I followed down in my car) and admittance went smoothly! I even got permission to go up with him before visiting hours start! Let me tell you this room is POSH.. and what a view!!! Holy cannoli this room is nicer than any of the hotels I’ve been in!!!
He’s settling in and we await the next steps in this process. Will keep you posted! ❤️🙏🏻🥰
February
28
2021

February 27, 2021

Hi All!!
Marc seems stronger.. had PT this morning where they had him walk around some and climb stairs! Gastrointestinally speaking, not too much change yet. He will be due for his next infusion of Remicade toward the end of his surgical hospitalization so I’m hopeful they will take care of it while he is down there.
NYU called and the plan is for the ambulance to come sometime tomorrow  morning to transport him down there. They have some testing to do on Monday in preparation for his surgery on Tuesday. We don’t have the specific details yet but I will post as soon as we know something! 

Thank you all once again.. the generosity and outpouring of support is overwhelming. There aren’t words to express gratitude and love we have for you all. ❤️❤️❤️

February
24
2021

February 24, 2021

Great news!!! Marc has moved on to solid foods today (bland, simple foods of course!) and was cleared by the Hospitalist to be transferred to NYU Langone this weekend for neurosurgery scheduled tentatively for Tuesday!! The procedure itself takes about 2-4 hours, spends 3-4 days in the hospital post-op and approximately 3 week recovery. 
His UC symptoms are not under control yet but he seems to be feeling better! He will be here at WP continuing his treatment until he is transferred by ambulance to NYU. Hopefully  each day brings more rest and healing of his colon before the procedure. He still will have a long way to go afterwards, from the surgery itself to the extensive muscle atrophy and regaining nutrition but in a way it’s a clean slate to start fresh with a healthy lifestyle!! 🤞🏻

February
24
2021

February 23, 2021

Hey All!
Marc’s spirits are up and his sense of humor is back! (Though that is probably from the sugar high from all the pure crap they bring him to drink/ eat on the “liquid diet” - have you ever seen the ingredients on Italian Ice!? I fail to see how Water, Sugar, Glucose, Citric Acid, Acacia Gum, Xanthan Gum, Soy Protein, Artificial Flavor, Red 40. are therapeutic in any way, shape, or form!! Hospital “nutrition” SUCKS!)

His frustration at how slow this process is a battle he is fighting daily. Is the Remicade working/will it work? When will he have some  relief from the back and forth to the bathroom following whatever he drinks/“eats.” It is still slow going but day to day I really do think we are seeing baby step improvements! 

The other concern is that he needs to have his Pituitary Adenoma removed ASAP. It is not an emergency, but does need attention soon-  however he cannot go for neurosurgery at NYU until his colon is officially “on the mend” as it could potentially cause complications in his current condition. So that is where we are now.

Will keep you all up to date on how Marc is doing via this website that my angel- Kim Force set up and encouraged me to do. I also want to thank Kim and Christian for taking Dane and Jace in and caring for them like they were their own, throughout this time. Marc and I are FOREVER indebted to you. ❤️❤️❤️❤️❤️


We also want to thank my other angel- Irina Gvirtz for organizing and setting up the Meal Train site that so many people have generously given delicious meals to take the stress off of me... let me just say, my kiddos have never eaten so well!! 🤣🙏🏻❤️


You all mean the world to us... this is what is so special about our community... we are like a enormous family.. we take care of each other. I cannot even begin to tell you what a help you all have been.. the comforting words of encouragement, love and selfless offers of help...


Thank you, thank you, thank you! 🙏🏻❤️