Mara’s Story

Site created on December 31, 2018

Welcome to our CaringBridge website. We are using it to keep family and friends updated in one place. We have had such an out pouring of love that we are having a hard time keeping everyone updated and hope that you use this site to get updated information.  We still love the calls and texts and want you to know that we read every single one of them and can't always get to responding!


Mara was born 7lbs 3oz  on Thursday, December 27 at 12:08  via emergency C-section due significant blood loss due to fetal maternal hemorrhage. She received a blood transfusion and is currently at Children's Hospital in Minneapolis. She is currently being monitored for functioning of organs and will be having neurological evaluations as brain damage has likely occurred according to the doctors. We wait patiently to learn more about her needs and love her dearly.

Newest Update

Journal entry by Mary Wenaas

2 weeks ago I noticed that Mara had pink pee after the day at the county fair. Did she get dehydrated? I of course was worried that kidney function was getting worse or maybe Mara had a kidney stone. Then I remembered that Mara had eaten 3 beets in the previous 2 days. Yup. She was peeing pink from eating beets. Dwight Schrute would be very proud of Mara's love for beets. If you don't know who Dwight Schrute is... Watch an episode or 2 of The Office and enjoy a few laughs. I am glad we can laugh about Mara's kidney stuff when we are not in crisis!

Mara did meet with her kidney doctor this last week and is growing and thriving which is great and a good sign that her kidneys are still doing their job. Labs and blood pressure are stable with no sign of big changes in kidney functioning. The kidney doctor gave us the green light to not come back again for 6 months!! Next set of labs and blood pressure check is now set for January 2024!

Mara also got the green light from the NICU follow-up program 2 weeks ago to graduate from their services after completing testing to screen for learning disabilities. No additional referrals were made as her little brain is doing everything it is supposed to do. Big exhale as this was testing I had been waiting for since Mara was born.

Mara has just started pediatric pelvic floor physical therapy to get help with potty training as we don't know how to potty train someone who has zero urges to go potty. Mara is excited to have a doctor who will teach her how to pee and poop as she really wants big girl underwear.

Mara also has her yearly lipid check and cardiology appointment in September. So stay tuned for hopefully another boring update. Those are our favorite to share!

In the meantime, we look forward to less medical stuff for the moment and can focus on other things like collecting pop tabs for the Ronald McDonald house and serving a meal at the Ronald McDonald house to pay forward the goodness we received from them when she was born. Mara is focused on other good things like ballet class this summer, learning to paddle a canoe, camping and starting preschool this fall. And maybe eating fewer beets.....

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