Mandy’s Story

Site created on September 25, 2018

Welcome to our CaringBridge website. We are using it to keep family and friends updated in one place. We appreciate your support and words of hope and encouragement. Thank you for visiting.

Newest Update

Good news!

Journal entry by Lori Pile —

We have some good news to share about Mandy aka Chunky Monkey.

Mandy has been approved to begin the medication ONC201 for compassionate use. It is proven to shrink Glioma tumors in children and adults.  Its trial is not currently open here for use. Mandy will be taking an antibiotic three days a week due to the length of time she’s been taking steroids and it has her immune system low. This is to prepare her for the ONC201 medication. Please continue to pray that this will be the cure needed!

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