Just found your caring bridge. We are going through a very similar experience. Can I ask what you are doing to get her moving and walking again? Are doctors helping? PT/OT? Do you get help outside of Children's or is all the care through them? We are with Cincinnati Children's but we have SO MANY SET BACKS!! How do you get the help you need when the doctors think you need to accept your daughter as she is rather than help? We just feel stuck right now. https://www.caringbridge.org/visit/makaylasmiraclejourney

makayla and sheila💛- stay strong!! courage to you😍

Very happy to hear of Makayla’s progress! And so very sorry for your loss 😔

We're so, so thankful. How can I ever praise my Lord enough, for what He has done for Makayla and all He's been doing to hold you all up during such a difficult time. Jolene was so special. We miss her. Our love and prayers continue on for courage, strength and comfort.

🫂💔🙏💫🫂

You all truly have been through Alot!!! I loved reading your post and Wish you all courage for the coming days ahead🙏🫂Love You All💕

So glad to hear Makayla’s continuing to do well, but very sorry for your loss. Still, rejoicing that you are in a much different/better place today than you were when we met you during Makayla’s rehab at TCH. Please let her know we’re thinking of her and continue to wish you the best. Also praying for comfort for all of you

🥲Thank you for sharing. Sheila, so it could speak to someone else. Makes me think of the words of song "but through it all, He's never changed, God is still good." He truly is and every day is one day closer to being with Him and our loved ones forever! Makayla, I'm so thankful for the multiple miracles that God has done in your life. Keep on keeping on, one bit at a time with what God has given you💓