I realized I kind of left people in the dust- I’m so lucky to have people who care and ask about me- or they are voyeurs but whatever! It’s been almost a year since I last posted. Not the year I thought it was going to be in terms of recovery, but overall I’m still improving. It’s just soooo slooooow. I had an ankle procedure where the bone marrow from my pelvis was transplanted somewhere into my ankle and foot where I had multiple broken bones and sure enough it worked. Everything healed and I’m so grateful! It was a long and really stressful process, and of course during that time I began to get other infections. Which brings me to now. So the asshole cushings disease (which I am still in REMISSION from!!) damaged my abdomen and almost everything in it. I have been getting a lot of infections in there and that has to stop.  Tomorrow I have surgery to fix all the holes and tears and some other stuff. It’s been delayed due to these infections and a stress test- which I thankfully passed- only damage is a leaky valve and an enlarged atrium. They will keep an eye on it. 
I really thought by now I’d be back at work and running miles like I used to so long ago. But not quite yet. I’m staying as positive as I can in between tantrums. Sometimes I wake up in the morning and I still can’t believe all of this happened. But in retrospect all of the very strange things that have gone on with my body since I was a little kid make sense now, and I have peace. Back then I believe the cycles of disease were much shorter of course than they were at the end- before diagnosis- and that’s what kept it masked. Although I don’t doubt a good pediatrician nowadays would have figured it out.

I hope my story has at least reminded people that if your body isn’t acting human, it probably isn’t. Just kidding. But seriously, if stuff isn’t right- please don’t stop until you get help. And if your stuff IS acting right- never forget to be grateful always.

I’m still requesting love and attention for my three wild yet loving children and my hubby Aug. They need it. So if you see them around, tell them something nice.

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