Lucy’s Story

Site created on July 16, 2020

Welcome to our CaringBridge website. We are using it to keep family and friends updated in one place. We appreciate your support and words of hope and encouragement. Thank you for visiting.

Newest Update

Journal entry by Katie Feltman

Just wanted to share a quick update for those of you unable to follow Lucy on Facebook. 

Lucy is doing great! No illnesses or major issues and she’s happy as a clam. She is growing well and continues to make small improvements, particularly in her arm control and strength. She also loves being in her stander and we can tell her neck has gotten stronger from spending time in there. She turned one a couple of months ago, so our latest project is starting to transition her diet from all breast milk to a mix of milk and blended food. She loves being able to spend more time outside now that the weather is warmer. We even took her to the zoo in April! 

✔️ Happy
✔️ Thriving
✔️ Hoping treatment will be available later this year to make things even BETTER! #smashSMARD

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