Lucas ’s Story

Site created on October 16, 2019

On 10/15/19,  Baby Lucas (9mo) was diagnosed with infant restrictive cardiomyopathy (RCM) - an extremely rare heart disease. There are no current management options or cure for RCM, and Lucas’ will need a heart transplant.

We’ll be using this site to provide updates of his family’s journey to find a heart strong enough to support all the joy, life, and love Lucas has to give.

Newest Update

Journal entry by Andrew Fadenrecht

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