Mikah’s Story

Site created on September 15, 2018

Friends and family...welcome to Mikah's CaringBridge website.  We (the TEAM) have decided to set this site up for Michael and Sarah. Please know they have not asked for any of this, however, it is necessary.   We are gratefully overwhelmed by the amount of people who would like to help and our goal is to have ONE location that you can do just that! We are using this site to keep family and friends updated in one place. We appreciate your support and words of hope and encouragement.  On this site, you will find many ways to help, and a place to get some updates as well as a place for you to send encouraging words! We love and appreciate all of our family and friends for your willingness to help and your love for our family.

On this site, you will also find the link to the MealTrain here (https://www.mealtrain.com/trains/m8orm6), the link to the donation site here (https://sbcbf.org/), as well as a link to a sign up for other items that may be a blessing to Michael and Sarah and the kids here (https://www.signupgenius.com/go/30e0b44aaa723a5f49-love) or please click on the hand and heart icon that says "Ways to Help". Thank you for visiting.





       Dear Family, Church Family, Fire Family and Friends,

 

On Friday, September 14th, 2018 we received the most devastating news of our lives. We learned that Mikah, our brave and Batman loving four-year old has B-Cell Acute Lymphoblastic Leukemia. It is still hard to think about all that has happened in these last few days. He was first admitted into Pomona Valley Hospital Medical Center on Thursday afternoon the 13th because of Michael’s intuition that something wasn’t right. At Pomona Valley Hospital they confirmed that his Red and White blood cells, along with his Platelets were low but they would need to send him to a children’s specialist to give an exact diagnosis. Michael asked the doctors if Mikah could go to Loma Linda University Medical Center. At first they told us that it is very difficult to get into Loma Linda. Loma Linda University told Pomona they didn’t have a bed open for Mikah on the children’s floor but that they would find a spot. They opened up a spot on another floor until a bed was available in the children’s hospital. After a team of specialist did the bone marrow biopsy, it was confirmed that 91% of Mikah’s bone marrow was full of leukemia and that he would be starting a very aggressive 28 day regiment of chemotherapy the following day. The goal is to reduce the leukemia cells to 0.1% in the first 28 days. We know Mikah is in the very best hands at LLUMC and are so thankful for all the talented Staff and Doctors here. 

 

Now we begin this journey that we never imagined that we would be on. It is heartbreaking to watching your sweet and lively four year old become sad and somber. We think about our three other children and how life is going to shift so quickly for them also. They are also worried about their brother and just want him home. We know we cannot walk this cancer journey without the love and support from you, our family and friends. We are trusting that the God who blessed us with our children will also be along side us every step of the way in this season of life. We appreciate and are so thankful of the overwhelming amount of Love and Support we have already received. We can’t thank you enough for loving our little Mikah. 

 

Love,

 

The Carney Family 

 

 “Therefore we do not lose heart. Though outwardly we are wasting away, yet inwardly we are being renewed day by day. For our light and momentary troubles are achieving for us an eternal glory that far outweighs them all. So we fix our eyes not on what is seen, but on what is unseen, since what is seen is temporary, but what is unseen is eternal.” 2 Corinthians 4:16:19


                           




Newest Update

Journal entry by Sarah Carney

May 21st, 2019 will be 250 days since Mikah was diagnosed with B-Cell Acute Lymphoblastic Leukemia and his first day of MAINTENANCE. We were told that the first 6-9 months are the hardest and that the next 2 1/2 years will also have difficult moments. The last 250 days have been tough. It's horrible to bring your beautiful child into the hospital clinic knowing they are going to be pumping his body with poison and knowing that without that poison your child may not live. There is nothing fun about cancer. This is a trial I would not willingly chose again or wish anyone to have to go through. We will never be the same. If I let my mind go to dark places, I think about the fact that Mikah still has 30 months of treatment to endure and after that if everything goes "well", we still have 5 years to wonder if he will relapse. Basically, for the rest of my life, I will have to think about cancer. This journey has changed us. BUT, it has changed good things in our lives too. I've said it before and I will say it again. Prior to this, there were things in my heart that were taking up space of things that should have been there instead. 

"Create in me a clean heart, O God, And renew a steadfast spirit within me." Psalm 51:10 

I had the opportunity to attend our churches women's conference "Renew" this weekend and I wanted to cry when I saw this verse up on the screen as soon as I walked into the sanctuary. This trial in our lives in not one I would chose and yet God has used it in so many ways, including my life, to teach me about His love for me and His children. I saw a quote that said "God uses broken and hurting people to help broken and hurting people". Mikah was not given cancer as a punishment, rather He is using a broken thing from this world and is instead showing us what beauty from ashes means. I read this recently from a blog, and I couldn't have said it any better: 

"Yes, it’s true, life is not always happy. It’s not always easy. It deals harshly sometimes, it seems unfair, and we may wonder where God is, or why He didn’t stop that difficult event or illness from happening.

His Truth says this: He was there. In the midst of it all.


And though we may not always see it, or feel it, or even understand it, we can know beyond a doubt, that He is now. Still. He is with us.


"To provide for those who grieve...to bestow on them a crown of beauty instead of ashes." Isaiah 61:3


For He will never leave us or forsake us, His love for us in greater than we could ever imagine, though we live in a world where we face trouble many days.


Jesus reminds us in John 16:33, “In this world you will have trouble, but take courage, for I have overcome the world.”


And that’s the key to the ashes that cover our days in this life. The deeper Truth that shines through every bit of our grief, and pain, and sin, is this, Christ came to set us free. Christ came to redeem. Christ came to bring hope. Christ came to bring beauty from ashes.

Take courage dear friends who are facing deep battles. He is greater than any enemy we face in this life. We overcome because He has overcome and our lives are hidden in Christ. May God cover you with peace, may He bring healing in the face of hard news, may He bring deep, abiding joy that makes no sense to the world, may He bring comfort and care as He wraps you in His arms. The God of miracles fights for you today, and He is Mighty.


There's still beauty ahead...straight out of ashes. Christ redeems. Grace."

Thank you for your continued prayers for our Mikah. On May 21st, he will have chemo in his spine and will do so every 3 months from now until the end of treatment in November 2021. He will also go into the clinic once a month for chemo in his port. We still have to be careful with illness and sickness but life can resume a little bit back to "normal" for a 5 year old. He will also have daily meds and steroids for 5 days of the month when he receives chemo at the clinic. He's amazing and handles all of this without complaining. His strength makes us stronger. 

For those of you who continue to ask how you can still help, San Bernardino County Fire is still taking donations to the benevolent foundation here. Thank you!


 

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