1 year update on Lewis reposted from Facebook for anyone who still follows along on here!

Today officially marks 1 year post-transplant for Lewis and is such a bittersweet day. 

Today is the day we came close to losing Lewis because his new heart was stiff and not pumping well. Today is also the day that his donor family faced unimaginable loss. But today is the day that Lew was given a 2nd chance at life. 

1 year is a huge milestone for transplant recipients because the highest risk for rejection and complications occurs in the first year. We are thrilled and amazed that Lewis has had such a smooth year. He has had 0 rejection, 0 severe infections, 0 readmissions, and made it through the worst respiratory season (so far) with only a few minor colds despite being on high dose immunosuppressants. His recent heart cath showed his heart looks and is functioning perfect. 

We are in awe of Lewis and how he has developmentally caught up despite everything he has been through. He continues to have a magnetic personality and lights up our lives. 

His swallowing/aspiration problem improved, but he still ended up getting a g-tube for hydration because he doesn’t like drinking as much water as his doctor wants him to. Our last little challenge is getting him to drink more and eventually get rid of the tube. 

Lewis still has a long journey ahead of him but we are so grateful for the extra time we’ve had with our boy and we are forever grateful for his donor family and their generous gift ❤️