Had my last infusion of keytruda immunotherapy on May 2nd. The day after it, I experienced significant pain in my legs. It was so bad I couldn’t walk around the house even from room to room without pain. Each day, for the next few, was terrible. I finally called oncology the following Monday and told them what was going on. I met with the PA and she ordered a test to check for blood clots and an X-ray of my legs. Nothing showed up on those tests so I was referred to a rheumatologist. I just met with that doc last week. I explained all of the pain I’ve been having and just generally feeling crappy. She is convinced I am having an adverse immune system response to the keytruda. Basically my immune system is trying to eat away at my muscles. She ordered several labs, an ekg, an mri of my legs as well as a muscle biopsy. I am not sure I want to have the biopsy as it won’t really change what the treatment will be which is high doses of steroids to stop my immune system from being wonky. I believe it is the keytruda as well and so I do not plan to have another infusion any time soon. I hope my cancer is at bay and that won’t be a bad idea but regardless my quality of life has been in the shitter for at least a year getting these treatments and I am just done with feeling this way. I went from being able to walk to having to use a wheelchair wherever I go. I have so much muscle pain and weakness that it makes it difficult to not only walk but do just about anything. So I have the mri scheduled for this coming Monday and then a PET scan scheduled on Tuesday and then I see oncology Thursday to discuss everything. It takes about 6 weeks for the immunotherapy to get out of my system and I am excited to see how much better I’ll feel once I get to that point. I just want to feel somewhat normal again. Hopefully ending the infusions won’t mean cancer comes roaring back. I just have to take that risk because the past couple of years have been very difficult and something needs to give.