LeRae’s Story

Site created on September 3, 2019


Welcome to our CaringBridge website. We are using it to keep family and friends updated in one place. We appreciate your support and words of hope and encouragement.  We are not taking any donations, any money donated will go directly to the CaringBridge site itself.  




How it all started

Journal entry by Terri Shepherd — Sep 3, 2019
Mom went to her annual physical on July 30th.  She mentioned to her doctor that her left side was a little sore thinking she pulled a muscle from weeding.  The doctor felt the area and became very concerned and ordered a CT scan.  She thought there might be something in the colon.

The CT Scan was on Thursday August 1st and results of that showed a large tumor in the pelvis.  An appointment was made with an orthopedic cancer doctor.  This is how our journey began. 

The doctor knew it was cancer and scheduled a core needle biopsy on August 9th. The results of the biopsy diagnosed her with "Double Hit" B-Cell Lymphoma. (Non-Hodgkins)  The tumor has eaten her left pelvic bone they think about 6". The good news is that none of the bone that is gone is in a weight bearing area, so she doesn't have any issues with walking.   

Her PET scan was on Thursday August 29th which showed that the cancer has not spread, however, there are some limitations of what a PET Scan can detect. 

She was admitted to Masonic Cancer Center at the University of Minnesota on Friday August 30th. 

On Friday they did an ECHO which showed her heart was very strong and could handle chemo.  They did a Bone Marrow biopsy and a lumbar puncture, both to test for cancer cells. No results of those have come back yet. 

After meeting with the Doctors, she decided to to do a very "hard" course of treatment.  In general they do not use the course of treatment for anyone over age 75 or 80, but mom is so healthy, the think she can handle this. This treatment is called R-EPOCH.  She will need to be in the hospital for each round of chemo, which is 5 days of 24 hours a day every 3 weeks for 6 cycles. 

Saturday, August 31st
Mom's Uric Acid levels were high, this is a sign that the tumor is very active.  They started a med for that.  She is at risk for Tumor Lysis Syndrome due to high levels of Uric Acid and the type of tumor she has. 

They also started her on Rituxan which ran over 4 hours.  It is called immunotherapy which prepares the cancer cells to be destroyed by Chemo.   Often there are side effects to this treatment and she did not have any reactions or side effects. 

Due to her age and risk signs so far, they are starting her treatment with this.  After watching her for a few days, they will start the Chemo treatment, which will be 24 hour a day infusion for 4 days.  She will be discharged after the 5th day after the infusion. 

Once she goes home, she will need to go for labs 2 times a week to watch for anemia and low blood counts.  Once levels get too low, they will do blood transfusions.  7-10 days after the chemo starts is when her levels will be the worst and she is most susceptible to infection and illness during those days.  She will be super cautious during this time to insure she isn’t exposed to any germs. 

Mom is not in any pain and feels good.   It is shocking to learn she has this since there are no symptoms. 


Newest Update

Journal entry by Terri Shepherd

Well, I know it has been a long time since I have updated, but the good news is that mom has done so well, there wasn't much to update.  She came home today and we are celebrating her LAST cycle of chemo which ended today!!  She completed 4 cycles and they considered her in remission after the first two.  They do two more cycles as just a precaution.  She has had minor side effects, mostly fatigue, which is much worse than just being tired, and not much of an appetite.  She has done labs 2 times a week for the past several weeks to keep an eye on her blood. 

There have been a lot of doctors appointments and meds and rules to follow, but she is almost done with it.  She will have a few more weeks of labs and appointments and tests and then they discharge her from care for 3 months.  She will get a PET scan every 3 months for a while to continue to make sure the cancer stays away.   

She will be fatigued for quite a while.  She hopes to have the energy to wrap all the Christmas gifts she has bought online shopping!  

Thank you all who have sent notes and cards.  She loves them!  She especially likes emails since she has rarely talked to anyone since this all started.  She is just very tired and tries to do small tasks each day.  She has been cooking a little bit and one day did bake me biscotti, which is my favorite.  One special friend sends at least one prayer a day to her and sometimes more---you know who you are!  :)  We love and appreciate all your prayers as they have certainly made a difference.  
Patients and caregivers love hearing from you; add a comment to show your support.
Help LeRae Stay Connected to Family and Friends

A $25 donation to CaringBridge powers a site like LeRae's for two weeks. Will you make a gift to help ensure that this site stays online for them and for you?

Comments Hide comments

Show Your Support

See the Ways to Help page to get even more involved.

SVG_Icons_Back_To_Top
Top