Journal entry by Carly Ludewig —
In the last 2 weeks Lennon has continued to power through. We had only one ER visit for iv antibiotics and he was even able to make it on his kindergarten field trip. I can see some changes as far as appetite, bruising and getting tired faster but that is all to be expected. On the positive side of things Lennons eye lashes and hair are growing back ! I have never tried to focus on that aspect much as it has fallen out so many times and he's handsome regardless, hair or not. Still so fun to see some, regardless of how long it stays .
Today we brought the whole family. Lucy loves being able to come along and Lennon enjoys it now too because he said when Lucy comes he doesn't have to get his sleep medicine ( he's not wrong, we never bring Lucy on sedation days).
Lennon had to get poked more than once for access for no fault of his own , despite the pain with that he did wonderful per usual. Luckily for us, his port worked right away which is always a relief . Labs are definitely dropping fast but not to the point of needing transfusion yet. He got IV methotrexate today which always makes him feel crappy and causes mouth sores ( he already has some mouth sores from this med orally that I do at home ) and then an ivig infusion as he can't ever keep that level up on his own and it helps his immune system. We will check counts locally again next week . We are hoping to get at little more school time in for him until it's no longer safe. The kids did amazing today and they both have such a mature understanding for their ages of what we are doing and why we are here . When we pulled in to children's today Lucy ( who is 2 ) said "is it time for lennons chemo now ? "
We will pray for an uneventful week and continuing to be able to stay home. Love the Ludewigs !