Lee’s Story

Site created on April 29, 2021

Hello and thanks for checking in and caring about Lee. 

THE START
Lee had been not feeling well for awhile, with a greatly diminished appetite and severe weight loss. On Wednesday, 04.21, she started having intense abdominal pain, nausea, and vomiting. On Thursday, 04.22, she went to the ER at Eastside Medical in Snellville. After a 10 hour wait, she was seen and admitted to room 441. Over the next few days, she had a CT scan, an MRI, a full bone scan, and an abdominal X-ray. 

Owing largely to the very pleasant staff and accommodations at Eastside Medical Center, and to the constant presence of loved ones afforded by Eastside's unusually generous visitation policy (one-at-a-time, but 24/7), Lee has been in generally good spirits. Various pain and nausea meds, as well as IV nutrition (since she can't eat nor drink properly), have also kept her fairly comfortable for much of the stay.

Superhero Radiation Oncologist and dear family friend, Dr. Adam Nowlan, upon hearing of these troubles, stepped in and has been a tremendous help as a liaison between the family and the doctors. (He has done this while on his anniversary vacation, which means we're also grateful to his wife.)

THE INITIAL FINDINGS
• Lee has a 10 cm, almost certainly malignant mass on her left kidney. The mass is putting pressure on the stomach. It's also very near, but not IN, the vena cava (a major vein) — being near increases surgical difficulty and danger, but being in would be much worse. This mass appears to be rather advanced and may have involvement with nearby lymph nodes. It needs to come out, and the kidney with it. 
• She also has a 2.5 cm mass in the small intestine. This was originally thought to be an almost certainly malignant tumor, but it has since been decided that it's probably a benign growth called a Meckel's Diverticulum. Still, this is causing problems in her bowels, and needs to come out.
• Her overall kidney function is good, and the other kidney appears to be clear, so she should be okay with just her right kidney.
• For a variety of reasons, biopsies cannot be done until they are removed. Endoscopy is also prohibited, because of how far down the small intestines the bowel mass is.
• No initial indication that the kidney cancer is metastatic (spreading). That's very good, as metastasis decreases odds of survival.

THE EARLY PLAN
Build up her strength via the IV nutrition for about 3 weeks, at which time she would be transferred to Northside in Gwinnett, where both issues would be handled in a single surgery. The surgery requires 4 surgeons, and a facility with trauma capabilities.

THE CURVEBALLS
After almost a week in the hospital, Lee's abdominal pain, nausea, and vomiting returned, more brutal than before. For about 2 days and nights, no relief could be found. This caused the surgeons to consider switching to a less-than-ideal 2 surgery plan: an immediate bowel surgery, and a later kidney surgery. However, it was finally determined that the growth in her small intestine was causing an almost total bowel obstruction, and that this was the cause of her symptoms. A tube was installed through her nose, to continuously pump out the fluids that accumulate above the blockage, and this brought instant relief!

On Thursday, 04.29, during further review of her scans by the tumor board, something new was noticed: an unknown 15 mm hyper-density on the pancreas. 

THE NEW PLAN
UPDATE: Surgery is planned for Monday morning, May 3rd at Eastside Medical Center for the bowel obstruction, which is the most pressing issue. Then Lee will have time to recover from surgery and build up her strength eating real food while the doctors figure out the best way to address the other issues.

After a recovery period,  she will likey have the other surgery at Northside in Gwinnett, ASAP. A biopsy of the pancreatic abnormality will be done by a gastroenterologist, there. What the abnormality turns out to be, and whether or not it represents a spreading of the kidney cancer, will inform the way forward. Unless the biopsy causes a course change, the surgery for the kidney will then happen at Northside.

And that's where we are, at the moment. As you'd imagine, this has all been very rough for Lee. But, though her body's been battered and weakened, her spirit has shown great strength. Your concern for her means a lot to her, and to the rest of us, and your prayers for her are solicited.

Things are changing every day. If you'd like to be notified when we post new information, click the "Follow" button, above. That way, you'll get emails so that you don't miss anything.

Newest Update

Journal entry by owen eliasen

In the very early morning of Saturday, March 26th, Mom passed away in her sleep, in her home.

Following a few months without much change, her condition entered a sharp decline, both physically and mentally, about 3 weeks before her passing. When this decline became apparent, the family came together to provide constant care and companionship for her. Later, God blessed us by sending some wonderful in-home hospice caregivers to help, as well as Mom and Dad's dear pastor and his wife, who were very present, as were several fine church friends. 

Leading up to the end, I believe Mom and the family were all at peace — with one another, with God, and with what was happening. Now, Mom is experiencing that which was always her source of hope in this life: fellowship with Jesus and reunion with those she'd loved and lost. The rest of us, though beset by the strange gloom of her absence, understand and find joy in that. We're sad and happy and all doing ok.

Dad, who had himself been experiencing extreme fatigue, has since bounced back strongly, and is holding up well. We kids and various friends are staying close.

I know you were left without updates for quite a while, and I apologize for that. For a long time, there just wasn't much new to report. Mom's condition was neither improving nor deteriorating much, and we were all in an odd period of uncertainty as to what should be done about the cancer or its cascading repercussions. Although the family never definitively closed the door on the prospect of treatment beyond the surgeries, Mom had effectively decided she didn't want it. She didn't like any of the options of which we were aware, and the rest of us had mixed and unsure opinions. And then, when change came, it came quickly and ferociously, and Mom and Dad's needs required all we could give. I know none of you will begrudge me neglecting updates during that time, and I appreciate that, because I also know it would have been better for you to have known more.

Mom had prearranged cremation services (which was a blessing), so there won't be an immediate, conventional funeral. In a timeframe that is comfortable, we'll devise some sort of celebration for Mom, which will likely be small, simple, and not very soon. Any details that need to be shared will be posted here.

I think it's safe to say that, if you've come to read this, Mom loved you and knew your love. We're profoundly grateful for all of your interest, support, prayers, and kindness. Please take comfort in the knowledge that Lee was able to finish out her fruitful time on earth in her own home, in the company of her closest humans and animals — the family she had long and lovingly cultivated — and that she has now found freedom from every single thing that troubled her.

•  •  •  •  •

We've received many lovely flowers, thanks to all who sent them. Going forward (lest dad be drowned in blooms), we know that Mom would have loved donations in her name to one of her favorite animal charities:

NOAH'S ARK ANIMAL SANCTUARY
A 250-acre sanctuary for abused, unwanted, and neglected animals of many kinds. In addition to donating, you can visit the sanctuary in Locust Grove, Georgia, free of charge. We have a great memory of visiting here with Mom. She loved going on day trips with the whole family.
Donation Page

SHELTER UGOLYOK
A network of animal sanctuaries in Ukraine, which has rescued and cares for hundreds of animals, from horses to kittens. They're also offering their help to people in wartime distress. Mom had a fond friendship with the founder, Alexandra, who loved Mom very much, though they'd never met in person.
Donate via PayPal:  pawsofhelp@outlook.com
Donate via Venmo:  pawsofhelp

LIFELINE ANIMAL PROJECT at DeKalb County Animal Services
An excellent shelter for local homeless pets. They've been a great help to our family, several times.
Donation Page

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