Journal entry by Katelynn Franchett —
Ledger has finally worked himself back up to full volume feeds. They are still running at a slower rate on his pump, but the volume is there which is really what matters. He has spent the last few days adjusting from gut-rest to pedialyte at half-volume, then formula at half-volume & now full volume today. It’s been a slow & steady climb but he is doing it!
His incisions look great & he is a happy baby all around. We’re just waiting out another day to see consistency in his feeding tolerance as well as weight gain. Since he went a week without eating his weight has dropped off a bit & we need to work at getting that back up again.
As far as feeds go, when you take a break from the bottle for that long you lack interest & desire to eat from it too— or at least that’s how things work for Ledger. His bottle intake has been extremely poor, but thank goodness for his g-tube! Otherwise we would have to stay in the hospital even longer.
Prayers that he keeps progressing well & gains some weight so we can go home tomorrow 🙏🏻
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