Journal entry by laurie adami

I can’t believe we are approaching the holidays and I’ve not even thought about it except to be excited about Gus’s upcoming trip home from D.C. for Thanksgiving. He’s really enjoying his classes and took a formal photo he is using for his internship applications (see below).  For the second year in a row, we will be with Gus’s girlfriend, Hailey’s, extended family. We are so close to all of them and I won’t have to cook, clean up and deal with leftovers so I am happy!

My documentary film is slowly being constructed with the finalized product coming out after my April trek to Mount Everest Base. Sophie filmed my trial coordinator from last summer, Anna, as well as Dr. de Vos. She said she got lots of great footage.

Sophie and I did a challenging hike to Hondo Canyon last week - 7 1/2 miles and 1600 vertical feet (see photo below). It’s a beautiful trail near Malibu and is mostly in the shade. I’ve also regularly been doing a 5 1/2 mile loop from our house up to Briar Summit and then around the Mulholland loop. My hiking boots are great and I am experimenting with day packs and water bladders. I also did a great 10 mile hike in Fryman and Franklin Canyon one day (see the hike stats below on my iWatch).

I flew to Silicon Valley two weeks ago to meet with the Facebook CEO for Europe, the Middle East and Africa, Nicola Mendelsohn. She lives in London but was in Menlo Park for meetings so we were able to meet in person (see photo in front of the Facebook wall). She was recently diagnosed with follicular NHL and started a private Facebook group which now has over 6,000 members. She is also launching a foundation to help fund more research for cures.

I am completing my training this week to become a bedside buddy volunteer at the UCLA hospital in the transplant facility where I stayed summer 2018 when I got my CAR-T. I will complete the paper work next week and hope to start the week following, just in time for the holidays which is a good time to start helping.

Ben and I had Dr. de Vos and his wife, Isett, to dinner at our house a couple Sundays ago. I wanted to host them and share my gratitude with them both. They are delightful people, I am just disappointed she won’t join us in Nepal in April. Lots of laughter and some tears also as we talked about my health journey, rather cathartic.
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