Thank you for sharing the long list with alternative treatments you have tried. It is unfortunate that none of them worked for you, but at least you gave it a try. You need to add to the list the Frankincense Oil.
We all pray that your re-engineered T-cells will do their magic and bring you to a forever lasting remission. We are with you on this journey.
What fantastic news about your medical expenses being covered!! Re the CBD oil, your note was very interesting and informative. I am thinking about researching for Yankee, my dog. Someone told me it might be helpful for his Sudden Rage Syndrome, i.e., snarling at me and me alone.
Thank you SO much for sharing all of these details about your experience with CBD & THC. As I have said many times over the years, you leave no stone unturned, and you are incredibly thorough and reality-based, with great self-awareness. I think your experience highlights a very important thing about the recent explosion of CBD and/or THC-based treatments. Many of them are legitimate and can alleviate suffering for many people with minimal side effects - how wonderful (I may look into the potential to lower blood pressure - wasn't aware of that). But as your experience showed, it isn't going to work the same for everyone and can have some very bad side effects. So, thank you for your frank description of your personal situation. I hope you have a chance to share it with an even broader audience as it could be helpful to others in similar circumstances.
As for your dream about the too-big CAR-T cells, the interpretation seems pretty obvious (although I defer to my Italian stepmom, who is the expert at dream interpretation). You have anxiety about it, and yet you know the people on your team will be there to help you through this.
Try the kindness mindful meditation right as you are falling asleep... might turn the dreams a bit more positive. As you know, I take CBD oil (no THC) 1/2 dose from the same physician for my arthritis and it has helped... thank you for sharing your experience because it is so important to ask questions and request to be evaluated individually because we all react, or might react differently.
How about this... maybe in your dreams your T cells were so large because they are going to be SO BADASS and be the cure!
"...because I am in another clinical trial, the pharmaceutical company will pay all of my costs...": I had figured that Kite would pay for all associated costs of this CAR-T trial therapy, even the procedure fee despite Kite being a pharma company. Did de Vos' team specify otherwise upon your approval for ZUMA-5? It also seems contradictory that they would allow a patient to be in two or more trials.
Thank you for the long detailed catch-up Sweetheart!!! This is pretty awesome to have this “CaringBridge” which all of your friends and loved ones can plug-in to...and you don’t have to exhaust yourself repeating over and over again the same stepping stones along this journey!
I am so proud of you, my badass warrior princess. I also am in awe and happy for you that the pharma is taking care of all the costs for you!!! That is pretty incredible!!!
Whatever you do and wherever you rest this weekend...AC!!! AC!!! AC!!! (I expect with your port, you can’t cool off in the pool above your waist?)
We all pray that your re-engineered T-cells will do their magic and bring you to a forever lasting remission. We are with you on this journey.