laurie adami|Jul 5, 2018
So sorry, Jane, I just caught your second post. Please offer your friend my help via em or phone. Did he do auto or allo? Is he still follicular or transformed? They are doing CAR-t after stem cell transplant relapses so he shouldn’t give up if he has another set back. No pit at the moment to fill, I do miss Sharon and her funny sayings, everything scared the batsnot out of her. And as to the cupcakes, I would love to take you up on the offer but since I go in the hospital to get my cells back a week from Sunday and will likely be there for a week or more, let’s wait til I am home again as the boys will just eat them in my absence. Wish I could be a fly on the wall to see how they make out with everyday chores...have to instruct them on the washing machine this weekend, lol
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Jane Cormack|Jun 23, 2018
It is wonderful to reconnect with you. Let me know when you'd like some more cupcakes and I'll gladly send another care package your way. Sadly the CAL101 stopped working for my friend and he has gone through a bone marrow transplant or was it a stem cell and are they the same, don't remember. Last I heard he was on day 40 and that was weeks ago. I've called his wife, who is really my connection to him, but I've not heard back from her. Let me know if that "pit" Sharon from the LLS board used to call it comes into your line of sight and I'll send the concrete truck out to fill it in. Then I'll plant a garden of flowers for you to enjoy instead. Much love, Jane
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laurie adami|Jun 23, 2018
So good to hear from you, Jane. I still remember those cupcakes you made and shipped to me via FedEx! Is your friend still on cal101? Until I mastered the side effect (autoimmune diarrhea) it wasn’t fun but it’s the only thing that worked long term, well until car t... Has your friend had any side fx? If so please give him my email address and I can help him out. Love you
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