Well, we are still in NYC but doing ok. They have decided to do a procedure similar to an angiogram which will light up the vasculature in his liver and if they can they will open up or close off vessels to create flow to the right side of his liver. While we were not expecting to be here this long, I am thankful they want to move forward now and make this plan of the hepatic pump work. A huge praise- the medical oncology team was able to move some appointments around so that we no longer have to return on the 21st and all day on Christmas Eve. They were able to schedule everything on the 21st so we can enjoy Christmas at home! Very grateful for that. As always, thank you for all of the prayers and words of encouragement. God is good all the time, and we are blessed through all of you.
Today was a long one but Larry is out of surgery and doing well. His hepatic port/pump has been connected to his liver and is not showing any leakage, which is a blessing. We do have a prayer request- the right side of his liver is not connected properly because of vessel failure, and so chemo cannot currently reach that side. There is a chance the vessels will heal on their own and then begin working. If not, it will require another surgery to place a stint. We, of course, would prefer option A.
In the words of a dear friend “Hard to understand why things don’t go the way we see they should. Hard to trust HIS plan. And even harder to totally surrender it over to Him.” Hard but possible. I know God is holding us in His hands, I can feel His strength and peace. Thank you for all the prayers and please continue to pray. He will hopefully be discharged on Thursday and we will be back next week.
Hi everyone. I apologize for not updating in so long but we haven’t had much to report. Larry did amazingly well through 6 months of chemo and the tumors have gotten remarkably smaller! Praise the Lord!! Because he responded so well our oncologist at Johns Hopkins referred us to the surgeon we connected with at the beginning of this journey and he feels surgery is a go. That being said, he also felt it would be best to implant a port that would pump chemo directly into his liver but that is not something they do at JH. So, he called a friend at Sloan Kettering in NY and we were on the schedule for a surgical consult within a week. That was this past Monday. Everything went very well. The surgeon was very thorough and kind, and scheduled Larry for surgery on December 11th. Monday was a long day full of tests and waiting and then more tests but, as He always does, God put all the right people in our path and brought us safely home. Prayer requests would be wisdom and guidance for the surgeon and his team, strength and peace for Larry through surgery, and successful port placement and pump functionality. We will need to make monthly trips to NYC indefinitely so if anyone knows the best way to affordably get in and out of the city we would love to hear from you! Thank you all for your prayers and support. We know that God has shown His grace upon us and gotten us this far. We trust Him to continue to carry us through this.
Hi everyone, this is long overdue and I apologize for that. We prayed for a miracle and we got one! Larry had a CT scan and the tumors are shrinking! The report says “remarkable tumor reduction.” We all know Lar is remarkable so... lol.
He gets his 7th infusion tomorrow. It’s easier to face them now that we know it’s working. Please continue to pray for healing and minimal side effects from chemo. The side effects get a little bit more intense each time and we don’t want them to have to back off on any of the chemo. Blood work looks good so far so we carry on!
Thank you and love you all! ❤️❤️❤️
First day of chemo went well yesterday. We had sweet nurses and he didn’t have any immediate adverse reactions so that was a plus. We left mid-day and he has a pump that infuses the chemo into his port for a total of 48 hours. He will get disconnected tomorrow late morning. Next chemo session begins 5/30.
Please continue to pray for minimal side effects and maximum tumor shrinkage. Thank you all.
Hi friends and family. We just left JHU and Dr. DeJesus was encouraging but realistic as well. The tumors in his liver are extensive, which we knew. This makes his liver inoperable at this time. The chemo regimen recommended by LGH is the same as she would do plus adding a new drug called Avastin (this was one I had read about and was at the top of my list of things to ask about). Treatment should start next week. He will get another CT scan this week as a baseline before chemo and then rescanned every 2-3 months. Treatment will last 6 months, at which point, we will rescan and then see Dr. DeJesus again, along with Dr. Weiss, the surgeon. At that point, they will determine if they can operate to remove the remaining tumors. They will also look into additional therapies at that time if they are necessary. Please pray that his body responds well to treatment, with minimal side effects and major tumor reduction. She was very kind and explained things well. Thank you for the prayers! Love you ❤️
Saturday morning before the sun was even up, an amazing group of neighbors descended upon our yard and within 2 hours 10 scoops of mulch had been spread out on our flower beds. Thank you from the bottom of our hearts. That was such a blessing!
Larry continues to heal from surgery. He is still struggling with nausea so eating is a chore. Please pray that the nausea subsides so that he can eat well and gain some weight.
We are currently in a holding pattern, waiting for our appointment at Johns Hopkins a week from today, then to LGH oncology the next day to compare treatment plans. The following Monday (5/14) he will have a port placed so that they can begin chemo later that week or the following. Please pray for guidance and wisdom from our doctors and affirmation that we are on the right path. I will check in and update you all once we meet with both doctors next week.
Love you all and thank you for the prayers and all the love you have shown us.
God is able to do immeasurably more than all we ask or imagine, according to His power that is at work within us, to Him be the glory in the church and in Christ Jesus throughout all generations, forever and ever.
Just a quick update and a big praise the Lord, CT scan of the lungs seems to be clear. Doctor hasn’t said anything about the scan one way or another but we will take that report as a win!
Thank you to all the neighbors/friends, and family who have been a constant source of help. Besides the wonderful guys edging our lawn and weeding (thank you), today’s angel was Debbie at the women’s breast health center at LGH. I was struggling to find the right phone number and person who could help me when she answered the phone. She put the discs of Larry’s CT scans in my hands and I was out the door in less than an hour after we first spoke. It wasn’t her job and she doesn’t even know us but God worked through her today. Thank you Debbie!
Johns Hopkins has been in touch and will review all records and get us scheduled accordingly.
Love you all and blessings. ❤️
First, thank you for the abundance of prayers and kind words. You have all shown us such love and kindness, it is truly a blessing.
Yesterday was a rough day. The biopsy report came back from pathology and it wasn’t great news. We cried a lot and prayed even more. Some of you specifically have been praying for God to lead us to the right people to help us in this fight. Last night He did just that. Thanks to some wonderful people, we should be hearing from Johns Hopkins tomorrow. We received an email this morning, a Sunday morning, from the surgical director of the liver oncology multidisciplinary center at JHU saying he will have his team get in touch with us. What a miracle. God is good, all the time.
Thank you again for the prayers and support. I will do my best to keep you all updated as we move forward on this unwanted but not impossible journey.
Today is Saturday, April 21st. Dr. Hesham is going to have oncology come in for a consult and wants to get a CT scan of Larry's chest before he leaves the hospital today. Please pray that there is no metastasis in the lungs.
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After 5 weeks of struggling with what the doctors thought was a stomach virus trapped in Larry's colon, Larry had blood work done which revealed high inflammation markers and a low white-blood cell count. Last Friday, April 13th, Larry went to see a GI doctor who issued a CT scan for later that day which revealed masses on his colon and liver. Tuesday, April 17th, Larry had a colonoscopy which revealed a blockage in the colon which the doctors said could rupture at any moment. They scheduled him for emergency surgery at LGH for the following day. Wednesday, Dr. Hesham successfully removed the affected section of Larry's colon and all affected lymph nodes he could during this operation. Dr. Hesham was also able to biopsy the metastasized cancer in the liver. Larry and the family praise God that this operation went so well; better than many had expected.
Thursday morning Larry woke up with a strong appetite, he was able to eat eggs and pancakes for breakfast, soup and a sandwich for lunch, and a hospital style turkey dinner!
On Friday Larry woke up pretty nauseous, but the doctors said there were no 'red flags' and that Larry just needs more time to heal. They gave him more anti-nausea meds which allowed him to eat a bit of lunch and dinner Friday night.
Today is Saturday, April 21st. Dr. Hesham is going to have oncology come in for a consult and wants to get a CT scan of Larry's chest before he leaves today. Please pray that there is no metastasis in the lungs.
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