Journal

Journal entry by VALERIE Edgar

Kyle’s last chemo treatment was this week & he was released from the hospital Thursday! We also met with his orthopedic oncology surgeon Carol Morris. He plans to ring the bell December 7 at 10 am at the 11th floor of the Bloomberg Children’s Hospital 1800 Orleans Street. Please join us! 

 

We have a series of tests to get the all clear over the next two weeks. 2019 will be about physical therapy to regain full use of his leg. He wants to climb stairs and be as mobile as possible for when he returns to USC in August. 

 

Thanks for the support and prayers this year. They have made a difference in our lives and helped Kyle beat cancer !  I will post a video of him ringing the bell next week! 

 

#Kylestrong #beatcancer
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Journal entry by VALERIE Edgar

Today is Kyle’s last major surgery - removal of osteosarcoma from his right lung. The eviction of the intruder ! 
This is the last major surgery and then eventually they will remove the port, probably next year. 
He will be in the ICU tonight and then in the hospital for a week. He will resume chemo Oct 8. 
He remains positive and is determined to continue life as normal. He did get a visit to SC to see friends and a quick day and night in Wildwood NJ. He loves the beach so that was a nice pre-surgery treat. Thanks for the continued prayers. He’s been amazing throughout this and been a friend to some of the younger kids at Hopkins. It is humbling to see the brave kids who are being robbed of a portion of their childhood and forced to face life-threatening diseases. They are all my heroes. Kyle of course being my biggest hero.  #kylestrong 

Journal entry by VALERIE Edgar

Big week - Brace is off and Kyle is allowed to walk on his leg. 
He starts physical therapy while in-patient for chemo this week and next.
Next surgery is September 24.
Thanks to everyone for the support. His positive attitude is in part thanks to the friends and family who have helped us through this journey. 
#kylestrong

Journal entry by VALERIE Edgar

Kyle’s Surgeon is very pleased with how the surgery went. He tested his lungs and he has 99 percent lung capacity remaining! 
He’s in a lot of pain due to having a chest tube drain but after a few days and that clears out he should feel much better. 
The nurses and doctors are awesome at Hopkins. We appreciate the prayers and visits. He’s in Bloomberg 11 south room 18. Ironically he’s 18 going in and will leave a 19 year old as of Monday.  We’ve always celebrated his birthday to the max, and this year our celebration will be a little later at Fogo de Chao Friday - but a very meaningful birthday for all of us. I know he will have many many more! 

Journal entry by VALERIE Edgar

Kyle’s surgery to remove the tumor was today. Surgeons were pleased and said it went well. 

His spirits are good and he’s doing movie quotes, so he’s getting to be back to himself.  Thanks for the prayers and well wishes. It means the world to us!

Journal entry by VALERIE Edgar

Kyle came home yesterday and with the nice weather, we hope to get him out on some flat trails. We bought some "heavy terrain" crutch stoppers. So he will have one set for "off road' and one for regular use. We also have a wheelchair but he only wants to use that when absolutely necessary (and it will be when he has his surgery). The guidance has been to stay active so he's taking that to heart. He did laps around the ward at Hopkins. The pain in his leg has eased and he does have a variety of pain killers if needed. 
He has another round of several weeks of chemo - then a break and then the surgery on his leg and knee. Looks like mid to late May. It is a complicated, long surgery. We'll post when it is scheduled here. 
He's in great spirits and very positive. He enjoys visitors to his apartment :) - although next week may be tough as the last round of chemo will hit the hardest next week.
Appreciate the meal train - such a nice break, thank you everyone. We're very grateful for the support, prayers and well wishes. #KYLESTRONG #BEAT CANCER!

Journal entry by VALERIE Edgar

Thank you to all of you for being the team behind us in this battle. Army, platoon, team- no matter the term, we appreciate the prayers, support, meals, movies, snacks, contributions and help. Thank you - it means so much to face this knowing we have so much support. Thanks ! 

Journal entry by VALERIE Edgar

Kyle is at Hopkins getting his third round of chemo. Thus far he has not experienced nausea thanks to the great precautionary meds included in his treatment. 
Hes had lots of visitors - keep coming! As long as you aren’t sick or been sick recently, the more the merrier. 
The nurses all know him now and he’s gotten a reputation for being the social guy. He’s pushing himself to get around on his crutches and do laps in the unit because the nurses said that helps his body process the chemo and he will get to go home sooner. So that motivated him despite still having pain. He got a great view from his room this time - really pretty at night. 
Thanks to all for the help through the meal train - it has been such a relief. The kindness we’ve been shown by family, friends, neighbors, strangers and the health care team has truly made this more bearable. 

Journal entry by VALERIE Edgar

Kyle started chemo yesterday. Dave, me and his Uncle Mike helped him settle in. He has a view of the shock trauma helipad. He is in great spirits and enjoyed several visitors. He ate a lot of food and has not felt ill. He’s sleeping a lot so if you come to visit just wake him up - he’d rather see friends and family than sleep.
Kyle’s Story

Site created on March 13, 2018

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