Krisanna’s Story

Site created on June 28, 2009

       "Have a bright sunshiny yellow day!"

                                Krisanna Roberts

On May 26, 2009, 14 year old Krisanna celebrated graduation:  an MRI showed that the tumor bed remained stable following a 2004 gamma knife procedure on her third brain tumor, so she graduated to annual check-ups at St. Jude Children’s Research Hospital.  

Merely two weeks later, an MRI revealed that a tumor at the base of her spine was the source of pain she had been experiencing for a month as sixth grade wound down and the promise of summer beckoned.  She returned to Memphis for the summer.

For eleven years Krisanna Roberts battled an aggressive brain tumor called an Atypical Teratoid Rhabdoid Tumor.  She was St. Jude’s longest surviving AT/RT patient. The tumor first presented in the brain and returned twice following initial occurrence and treatment.  The fourth occurrence was the first time the tumor had presented in the spine.

Krisanna’s spirit and determination soared as she began what she called her “summer vacation at her home away from home” at Target House.  Arts and crafts was the name of the game ... and assigning each day a color unveiled the infinite spectrum of yellow for this pink and purple-loving princess.  In August, she returned home to Mobile, Alabama with big plans for seventh grade. 

On Septermber 1, Krisanna's spine scan showed that radiation had not reduced the tumor.  Hoping that long-term effects would reduce the size, Krisanna returned to school.  However, by the 3rd week of September, daily headaches, nausea, and emesis limited her activities.  By mid-October, she was in constant pain, eating little, and often dehydrated which home hospital visits helped only minimally.  We returned to St. Jude October 26 for a brain scan.

Shockingly, the scan revealed that the tumor had returned with a vengeance.  It covered her brain, and there were no medical options left.  Krisanna, however, didn't give up. She still had a lot of living to do!  With her Pollyanna spirit, she made big plans and celebrated every single day -- even the last in her hospital bed. She died in her "home away from home" on November 4, 2009.

Newest Update

Journal entry by krisanna's mom laura

Hi Sweet Girl,

Technically, it’s not New Year’s Eve … but it’s Little Christmas night, so in our family, this Night of Light is the transition to a new year.     Today has been filled with packing up Christmas – attempting to recall how the puzzle pieces of decor fit back in the boxes and figuring out how to add in the new stuff.  The struggle is real, and I miss you bustling around helping.

 

And so, I reminisce as I pack.  Angel ornaments marking the years, Nativity scenes of all sizes, colorful glass trees lighting up the room, and Aunt B’s amazing art whisk me into Memory Lane like a Dickens novel.  I hear laughter, I see your face, and I let the joy chase away the angst. 

 

This year has been so very special with opportunities to embrace your courage.  Miss Melissa invited me to share your love of camp during counselor orientation - such a blessing to be at camp with your friends .  At school, we celebrated the 15th annual Yellow Day celebration and many of your friends joined together with Krisanna's Garden to sponsor the day. The Parent Association sponsored yellow shirts again as a St. Jude’s fundraiser. Thanks to Miss Meridy, the entire school formed a 15 on the football field!  The roller coaster ride still surprises.

 

5185 days.  It seems so long ago, yet in some ways it seems like just a few weeks have passed.  I still talk you to all.the.time.  And I love that you show up in yellow flowers along the road, yellow chairs in the courtyard by the church on Christmas Eve, dropped yellow Skittles or stray pencils or fallen yellow leaves gracing the sidewalk.  When I most need a hug, you appear - and my heart bursts happy.  One of your friends will reach out or mention you out of the blue and all of my questions and doubts dissolve into the light and energy of your spirit.

 

So … yes, I started this on Jan 6.  Clearly, in true Dickens fashion, the “season of light” on Memory Lane distracted me.  Now, we are in the waning hours of “King Martin Day.”  Did I go to the bank today?  I still hear you passionately tell me the story I’ve recounted so many times.  I still want to hear you tell me – again - and again.  It has become the annual posting day.  Aunts and uncles greet me with "Did you go to the bank today?"  On that day so many years ago that you climbed into the back seat, perplexed, horrified, indignant about the injustices Miss Karin shared with your class, it didn't cross my mind that it would become a such a defining moment in our family.   

 

Sometimes, most unexpectedly, I want to tell you something that happens.  Recently, in a week that I talked to you frequently, I came across this poem, “Belief,” by Ann Thorp.  It is as if she were inside my head when she wrote it – and it reminded me of Fievel’s song in American Tail that you so loved to sing together.  So I sang it.  Yep - I still know the words  

 

Belief

I have to believe

That you still exist

Somewhere,

That you still watch me

Sometimes

That you still love me

Somehow.

 

I have to believe

That life has meaning

Somehow

That I am useful here

Sometimes,

That I make small differences

Somewhere.

 

I have to believe

That I need to stay here

For some time,

That all this teaches me

Something,

So that I can meet you again

Somewhere.
                       ~Ann Thorp

 

5185 days ago, you asked your dad to “lift me up to those angels.” 5185 days later, your spirit of yellow definitely exists – watching, loving, touching so many lives and making each thousand-years-long day a bright sunshiny yellow one … until I can meet you again - somewhere - out there.

 

Te amo, sweet girl ~

 

104,642

Patients and caregivers love hearing from you; add a comment to show your support.
Help Krisanna Stay Connected to Family and Friends

A $25 donation powers a page like Krisanna's for two weeks.

If you donate by April 17, your gift will doubled, up to $30,000, thanks to a matching gift by former CaringBridge board members.

Comments Hide comments

Show Your Support

See the Ways to Help page to get even more involved.

SVG_Icons_Back_To_Top
Top