So, it's been awhile (2 months).  I think part of me has avoided posting on Caring bridge because i wanted to believe everything was fantastic and going so well.  Truth is it's been a really rough couple months.  In Late May, we lost our night nurse.  This was expected but it still has made for really hard weekends when we have no nursing whatsoever.  Maxim, our home health care provider hasn't been able to find anyone to fill the role since and this morning our day shift nurse quit.  

In May Martina found out that there is a really good chance Kierlyn has Cerebral Paulsy.  In addition to that we now think she might be experiencing epileptic seizures... it's been rough...