Kevin’s Story

Site created on December 1, 2023

On November 22, 2023 – just days before Thanksgiving, we received the most distressing news that any parent could hear: “Your child has brain cancer.”

Kevin was diagnosed with DIPG – an incurable, inoperable pediatric brain cancer that only affects roughly 300 children in the United States annually. This rare disease still has no cure, with only supportive care available. The diagnosis is dire – with many children only living 1-2 years after diagnosis.

We do not know how long we have left with Kevin, but we are doing everything we can to keep him with us as long as we can, while he still feels like the rambunctious little boy that we know and love.

We have created this site to keep family and friends of Kevin and his family up to date, and so those that visit can learn more on how they can help. Assistance with meals, financial support for medical bills and living expenses is greatly appreciated. In honor of Kevin, any funds not used will be donated to fund further research on a cure for DIPG and similar pediatric brain cancers.

We love and appreciate any support you can provide during this difficult time.

Sincerely,

Kevin’s Mom

Newest Update

Ren Fest Fun!

Journal entry by Justyne Lobello —

Kevin has had some great weeks lately, and we are enjoying every moment. Today, we visited the Georgia Renaissance Festival with his mommy and grandma. He got to meet dogs, hold a fancy rat, eat dole whip and hand-dipped corn on the cob, and watch a few shows!

He also got a special gift from one of the vendors:  gold and grey snails that have colors that symbolize pediatric brain cancer awareness. Thank you "Blooms & Shrooms" for these cherished gifts.

He has his next MRI on Monday, and we are hopeful that the results are positive. I will publish an update next week. Thank you all for your continued support.

- Justyne

Read More of the journal titled "Ren Fest Fun!"
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