Kendall’s Story

Site created on February 25, 2018

Some of you may or may not know at four months old Kendall was diagnosed with Right Coronal Craniosynostosis. This Coronal suture runs across the top of the skull, almost from ear to ear. The suture closed prematurely. The skull does not grow on its own, instead, the brain is growing and puts pressure on the skull to get bigger.  When a suture closes, it does not allow for the brain to grow properly, therefore, the brain has to grow to the areas of the skull of least resistance creating disfigurement and potential brain pressure.  Although she has a mild case of this condition,  it was severe enough  for Kendall to have surgery at nine months old.  Both her cranio and neuro surgeons went in as a team, opened that fused suture, reconstructed her forehead while over compensating for future brain growth and reconstructed her right eye socket.  Sweet baby Kendall handled it beautifully.  She never shed one tear except when she was hungry. The Lord has and continues to have his hands all over our child.  

That was almost 10 years ago and unfortunately this condition never goes away until the brain stops growing.  Thankfully, her brain has reached 85 percent of its growth, therefore, this should be her last surgery as the surgeons will overcompensate with their reconstruction for that remaining anticipated brain growth.

So, this is why everyone is reading this now.  After our appt in Dallas, last year, Kendall’s doctor confirmed an additional reconstruction surgery is needed this year. Kendall’s Cranio Vault Reconstruction surgery is scheduled for Tuesday March 6th at 7:00 a.m. at The Craniofacial Center in Dallas, TX.

Newest Update

March 06, 2021

Journal entry by Alexess Swoope —

Happy 3 Year Anniversary!  

A very busy year Kendall has had.

Most importantly, she accepted Jesus Christ as her Lord and Savior.
She became an aunt for the first time to Ada Jane Nichols and is completely smitten.
She discovered she loves the game fast pitch softball and began pitching lessons.
She turned 13 years old.  
She is a 7th grader.
She got the braces off and couldn’t be happier!

We are Happy and thankful for everyday and every blessing bestowed upon us!

We love you!!!
Read More of the journal titled "March 06, 2021"
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