Today Karin had a new PET scan to determine if the new treatment is working and is effective. She has undergone only 2 cycles of Irinotecan, Temozolomide & Palbociclib since the last PET scan.
The results showed a stable condition. When looking at comparison with her last PET scan done at the end of February, they look the same. We thought it was going to show some more progress. Karin has been looking and feeling great. So it was a little disappointing to see and hear that there hasn't been more progress. But having said that, the disease hasn't progressed. No new lesions or new metastasis. Knowing that relapsed stage 4 Rhabdo is very aggressive and can continue to grow and metastasis while on treatment, it's a bit of a bitter sweet feeling. This is not great news but it's not terrible news either. Just seeing how Karin is doing and feeling, really puts things into prospective. I believe it's helping and I believe there's still alot hope. I think because she's had 3 PET scans in the last 4 months, this has really put our expectations really high. 
Karin and her oncologist have decided that she will start her next cycle (3) on Monday. She has chosen to get the Irinotecan via I.V rather than drinking it. I have literally ruined every juice for her by mixing this chemo drug that is straight out of an I.V bag, so I'm actually happy with her decision. It's less of a battle for me and Karin. So she will have to go to Children's for 5 days as an outpatient to receive this chemo drug via I.V. We'll only be there for a couple of hours. The other 2 chemo drugs are pill form, so she will take these at home. 
Karin also had another bone marrow biopsy done today. We will get the results next week.
Karin is taking this treatment cycle by cycle and how she's feeling. Please continue to pray and think positive for Karin. I & we know she's got this and want to see her to continue to benefit from continuing this new treatment! 
#2kstrong
I'll update soon.

Jen