Kaleb has made good progress since being home. Kaleb had a great birthday and has been very happy seeing his family, friends, school buddies Josh and Maia, and wonderful care givers.

Kaleb has progressed well with tube feeds, oral feeds and BMs. Kaleb’s appetite for oral feeds hasn’t been too much so his doctor said to stop the tube feeding for a couple days in order to see if his appetite increased and he couple possibly have the tube removed. We stopped the tube feeds around noon today.

The night got interesting however. Kaleb has had a bit of a runny nose. It seems that the runny nose generated a lot of mucus. Kaleb started to cough, then puke and as he started puking the feeding tube started to come up and out of Kaleb’s mouth. We had to quickly extract the tube and then everything was fine. So no choice now, the tube feeds are definitely stopped.

Kaleb wanted a quesadilla before bed, so we had a quesadilla as a bedtime snack. Hopefully the appetite continues to improve, the digestive system continues to do its job and we won’t need to insert another feeding tube.

Kaleb is all excited now about going back to school. Watch out Mrs. Summers and Ms. Sahak, Kaleb might be heading your way soon :)