Kaitlyn Marie’s Story

Site created on June 13, 2020

On 2/12/2020 Cory and Lisa went in for the 20 week ultrasound. This is the ultrasound that most every parent is waiting for to learn the gender of their little baby and see all its bits and pieces. It was at this ultrasound that it was found out that Kaitlyn has Congenital Diaphragmatic Hernia (commonly referred to as CDH). This was the beginning of a whirlwind of specialists, appointments and information.
Congenital Diaphragmatic Hernia is a condition that happens when the diaphragm doesn’t fully form and there is a hole. Due to the hole in her diaphragm her stomach and part of her intestines have moved through the hole and are now in her chest cavity.
On 3/4/20 there was a follow up appointment at Maternal Fetal Medicine and had an echo Fetal Echo done and we were told that Kaitlyn has two conditions in her heart. Ventricular Septal Defect (VSD) and Coarctation of the Aorta. VSD is where there is a hole between the bottom two chambers of the heart. Coarctation of the Aorta is a narrowing in the Aorta, a large artery at the top of the heart, which limits blood moving through her body..
Each of these diagnoses will require surgeries shortly after birth and Kaitlyn will be in the NICU for care for an undetermined amount of time.

A donation to the Kaitlyn’s Gofundme is appreciated, along with prayers. To donate just go to the “Ways to Help” and scroll to GoFundMe. Donations will be used for medical bills, cost of travel to and from the hospital (daily visit), lost wages (Cory's time off will be unpaid) and other unexpected expenses.

Newest Update

Journal entry by Cory Heffner

One year ago at 11:27am Kaitlyn was born. There was no crying, no breathing and just a heartbeat. I remember the U of M Masonic children's hospital doctors, nurses and others scrambling to get Kailyn to breathe. I remember my heart being torn on where to be, what to do, is she breathing yet, what is going to happen from here. My wife laid there being tended to by doctors, the nurses were rushing Kaitlyn to the NICU with me close behind. To say I couldn't keep it together was an understatement. All the while I'm trying to take in every bit of information they were telling me. Watching the staff hook all these wires and tubes to her from a distance was hard. Lisa being unable to see her baby girl for a few hours or so after giving birth was hard for her, especially knowing all the issues she had at birth. This was the most difficult day, week and year we have ever dealt with and to see this girl today, you'd almost never know she ever went through any of this.
 
Today is no normal birthday in this family, it's the best birthday for my little girl who I wasn't even sure would ever come home. So grateful for every single hospital staff that cared for her, cared for Lisa and I as we went through thirst first few months of Kaitlyn's life at Masonic and all the support of family and friends. If you reached out, donated, checked in on us from time to time we appreciate it more than you will ever know.
 
Today we are grateful that’s she is home, she is healthy and an extremely happy baby. Lisa still takes her to many appointments trying to get Kaitlyn up to speed on where she needs to be at this stage of her life. Both Lisa and Kaitlyn work very hard every day on Kaitlyn's eating, sitting up, learning to be on her hands and knees and so much more. I think we are not far away from her crawling and saying her first real word other than "HEY".
 
HAPPY BIRTHDAY PEANUT !!
Patients and caregivers love hearing from you; add a comment to show your support.
Help Kaitlyn Marie Stay Connected to Family and Friends

A $25 donation to CaringBridge powers a site like Kaitlyn Marie's for two weeks. Will you make a gift to help ensure that this site stays online for them and for you?

Comments Hide comments

Show Your Support

See the Ways to Help page to get even more involved.

SVG_Icons_Back_To_Top
Top