Jordan’s Story

Site created on October 26, 2019

On October 22, 2019 our daughter Jordan was diagnosed with Acute Myeloid Leukemia. It all started when she  stayed home from school with a fever and missed 2 days of school earlier in the month.   She was upset because the year had just begun and she  already missed more days of school in one month than all of last year.  The fever subsided and she returned to  her full schedule that included her studies at school, volleyball and ballet.  She felt better for the next 12 days, but still didn't feel 100%.  She was dealing with fatigue and didn't have her normal appetite.  On October 17 the fever returned. We saw the doctors that day and they suspected Mono.  When the  Mono test finally came back negative,  four days later we returned for more blood work.  The next morning we received the call that we should immediately head to Lurie Children's ER and prepare to be admitted.  


While this has been an incredibly difficult time to say the least it is not lost on us how lucky we are.
Lucky to have a world class hospital in our back yard
Lucky that Jordan is an incredibly strong young woman
Lucky to have an amazing son who loves his sister and never ceases to amaze us with his kindness.  
Lucky  to be surrounded by so much love from family and friends


We have received countless calls, texts, and emails expressing love, prayers and support    Will will take them all and please keep them coming.  It makes a huge impact each time we hear from someone.   While we fully expect that Jordan will beat this cancer, the road to recovery will be long .  Her fight and our journey is only beginning. 


We will continue to post updates and stay connected.  


Erin, Johnny, Jordan and Noah





Newest Update

Journal entry by Erin Gutierrez

Hello Everyone

Its been a long time since we update so this post will be a look back, and a look ahead.

In addition, every time we  speak with anyone of our incredibly supportive village of family and friends we get the question "what do you need or what can I do ."  This is a harder  question than it seems  but we have an answer.

A LOOK BACK

Our timing couldn't have been better coming home in early May and spending the summer at home in Chicago.

When we came home, we were met with signs and banners and sidewalk art.  It was super fun  when many of you participated in the Welcome Home Jordan parade.  Jordan attended her outdoor social distanced 8th Grade Graduation.  She was able to see her whole class who she missed the many months we were gone.  We celebrated many birthdays:  first Johnny, then Jordan and a few days later me.  Make a Wish helped Jordan get her birthday wish of spending day at the Lincoln Park Zoo.

We keep very busy, spending 3-4 hours a day at the hospital getting infusions.  We try to spend the rest of our time enjoying the back yard and beach.  

We were able to get out of the city and go fishing last week through and amazing program called Shane's' Anglers.  

Oh and Noah grew a foot and is now tall her that his Mama.  😮

Last but certainly not least we owe a huge thank you to Cal's Angels and Bear Necessities for making Jordan's ( and the whole family) long time wish for a puppy a reality. 

 WELCOME PENELOPE JOJO GUTIERREZ. This puppy has been home for about 10 days and she already has brought us so much love and joy!!!!

Check out the Gallery  - We uploaded tons of pics.

A LOOK AHEAD

Jordan has been doing great while we have been home.  Gaining strength and resting and detoxing a bit from the high dose treatments.  We are now ready to head back to St. Louis for another high dose chemo treatment that has shown good results in getting relapse and refractory patients into remission. and ready for transplant.  We have rented a place and set everything up for when we arrive.  Exact timeline isn't final yet and Johnny and I plan to make trips back to Chicago periodically. 

 

What can I do?

Huge thanks to our Sister in Law the amazing Erica for putting together Blood Drive in Jordan's Honor

Quick...! 

From Aunt Erica: Mark your calendars for THIS TUESDAY, AUGUST 25th - we are proud to be honoring our superhero niece Jordan through the 'Stay Strong Jordan' Rogers Park Community Blood Drive. 

Our superhero niece Jordan has depended on over 150 transfusions just since May 1st.  

Donating blood is easy, safe and every 2 seconds someone needs blood. With every donation up to 3 lives can be saved!

Did you know that the number one reason as to why someone doesn’t donate blood is that They were never asked!  Currently there is an Urgent need on blood donations for our area. 

Now -- we are asking YOU! 

The first of 3 drives. More details to come about drives in Northern suburbs.

Walk-ins are welcome; however, appointments are preferred and easy to schedule HERE or call 800.786.4483 

(See details below & flyer attached)

When: Tuesday, August 25th - 11am - 4pm

Where: Rogers Park Public Library, 6907 N. Clark Street 

Please register and tell your friends to donate in Jordan's honor this Tuesday!

https://donate.illinois.versiti.org/donor/schedules/drive_schedule/5587801

Let's do this! 

🧡🧡 

Jordan's Aunt Erica & Uncle Josh

Finally, as you can imagine we certainly were expecting Medical bills and expenses however there are many other expenses that we could not have predicted. From simple things like hospital parking to travel and renting and setting up an apartment out of town, and partnering with alternative and integrative therapies for Jordan's tough to treat diagnosis. 

Jordan designed these beautiful T- Shirts and Hoodies.  Show your support an love by purchasing from our Bonfire store.

https://www.bonfire.com/im-on-jodans-team/?utm_source=mailgun&utm_medium=Initial%20template&utm_campaign=order_made_for_owner

or donate via Go Fund Me. 

https://www.gofundme.com/f/1sl800e6w0

We Love you, We miss You,

Stay in touch -Stay safe and Healthy- Wear a Mask.

Erin, Johnny, Jordan and Noah.

 

 

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