Jon’s Story

Site created on March 2, 2019

On September 25, 2018, Jon was diagnosed with Acute Myeloid Leukemia with TP53 mutation.  His only hope for a cure would be a successful stem cell transplant. After Jon’s siblings were ruled out as donors and  an extensive, albeit unsuccessful, search for a full match donor, it was determined that our son, Mark, would be the donor, half-matched. Mark was involved in a car accident, received a concussion, and is still symptomatic, so he was no longer a candidate. It fell to our daughter, Misty, and on Feb. 25th, she donated nearly 1/2 gallon of bone marrow from which the stem cells would be harvested. The next day, Jon received her stem cells, a Haploidentical Transplant. One day at a time.

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Journal entry by Linda Wiley

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