Jon’s Story

Site created on March 10, 2021

Welcome to our CaringBridge website. We are using it to keep family and friends updated in one place. We appreciate your support and words of hope and encouragement. Thank you for visiting.


Here is the link to Jon's gofundme: https://www.gofundme.com/f/jon-kapocek

Newest Update

Journal entry by Emma Berg

I don’t know how it’s possible that it’s been 2 years since the day Jon was diagnosed. At the time, it felt like our world was ending and we were immediately pushed into a world we wanted no part of. Now, after grinding and fighting and sometimes barely hanging on, I can happily say we are coming out on the other side. Physically, Jon is feeling really good most days. His team has his medication regimen figured out to where he is right in the middle of their parameters. His lab numbers are still low for the average person, but we don’t have to worry as much as we used to when it came to the neutropenia. When Jon does have a bad day, that usually means his stomach is upset. Mornings are the toughest. The doctors (and us) are having a hard time figuring out if the nausea is caused by the meds and treatments still or if it’s another non-cancer related cause. I think we will just kind of have to wait and see how his body adjust when he is done with the medications for good in July. Until then, high doses of Pepcid. I look forward to the day where I'm not woken up to the sound of Jon vomiting... if I had a dollar for every time I've heard that I'd be RICH. 

Jon goes back in a couple weeks for his second to last spinal tap, Vincristine chemo, and run of steroids. I’m hoping we can also find out more information about when his port will get taken out and all of that. He will be done with treatment in the middle of baseball season and God FORBID he misses any more time on the diamond than he already has the past couple years. I simply can’t believe we are reaching the end of this. 2 years ago, it felt like this day would never come and I questioned whether we would ever feel “normal” again. Now, I can confidently answer that question — no. We will never have the luxury of normal again, but that isn’t all bad. I saw somewhere that it’s no wonder that the words cancer and cancel are so similar. Cancer cancelled a lot for us and laughed at us every time we thought we had it under control. We cancelled plans and trips and time with friends and family, but that’s the reality of being sick in your twenties. With that being said, with each bad thing came multiple good ones. We appreciate the small things more, we’ve formed relationships with people that we never otherwise would’ve, we’ve become closer as a couple and a family, and overall we just have a deeper appreciation of what it means to LIVE and be alive. 

 

I know it's not realistic to think that this will be the last  bad thing to ever happen to us, but I do know that this whole experience will shape the way we handle anything that comes our way in the future. It has also shaped the way we show up for the people in our lives and that is largely because of all of you. The support we have received these last 2 years cannot even be put into words. Whether it was a hug, text, card, prayer, or donation, not a single thing went unnoticed. It can be really hard when you're in the cancer bubble to focus on the good things, but all of you made that much easier. Endless thanks and love to all of you. July 2nd is going to be one of the happiest days of our lives!

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