Josiah & I stayed at CHOP for EEG monitoring/video from Friday til Monday. Thankfully the episodes are not seizure activity. He’s been diagnosed with breathe holding spells and will hopefully out grow them. We switched his tube feed formula to something more natural while we were there. We go back to CHOP Monday for a swallow study so we can start his speech therapy back up and hopefully get him eating some things by mouth. Josiah’s thrilled that stores are starting to open back up, he loves to get out. We received have been blessed with a donation of $5,000 towards his wheel chair accessible vehicle this week. We still have a long way to go but we are taking it day by day.