Maureen’s Story

Site created on February 23, 2018


Updated 2/8/19 Maureen & John's 55th wedding anniversary. 

In mid February 2018, Maureen was diagnosed with stage 4 ovarian cancer.  Chemo therapy started immediately thereafter.  Extensive surgery was performed on May 21st. It was considered successful in that it removed all visible cancer. Fortunately, no critical organs were infected. The post surgery round of chemo addressed any remaining lymph cancers that were not surgically accessible and escaped the initial round. 

At the time of diagnosis, the cancer marker in Maureen's blood CA 125 registered over 3,400 vs normal under 35.  Month by month, treatment by treatment with surgery in the middle,  that number came down dramatically by the end of August to 19... yes 19!  Furthermore, a PET scan of her body revealed no signs of cancer and the elusive lymph nodes had died. Altogether, this has been a remarkable emotional rollercoaster.  Her oncologist, normally not given to exaggeration, characterized the six month outcome as "great!"   Unfortunately, the progress wasn't durable. The cancer returned, to her abdomen  and,  subsequently metastasized to her brain. Fortunately, the recurrence was limited in terms number and size of lesions. 

Radiation therapy on the brain started on the day after Christmas 2018, for ten consecutive days. Chemo therapy for the abdomen was restarted immediately at the conclusion of radiation. 

Thankfully, there has been no direct discomfort from the cancer. However, Maureen has endured considerable side effects from the therapies, most notably heavy fatigue and skin irritation. 

Maureen has been suffering since spring 2017 from a painful rare auto immune disease called mucous membrane  pemphigoid (MMP).  It attacked her mouth and was resistant to all drug attempts to subdue it or even mitigate the pain. In retrospect, the undetected cancer may have interfered with her immune system's ability to use the drugs to knock down the MMP.  Maureen has received over a dozen infusions of immunoglobulin with more to come.  

Therapy side effects can include mouth sores so it's been difficult to discern the cause of the ongoing mouth pain, especially since the MMP is so rare and understudied. 

A few weeks after Maureen's radical surgery in late May,  John's back discomfort increased significantly. The caregiver role was abruptly reversed and despite her delicate condition, Maureen rose to the occasion.  John was diagnosed with a slipped disk and compressed nerve. He had successful spinal surgery at the end of August barely three months after Maureen's operation.  

Throughout this extremely challenging  experience, Maureen has been strong  physically, emotionally and spiritually.  However, as she reaches the 1st anniversary of the diagnosis on February 14, endurance is being tested, especially as she fights the side effects of the therapies.  She's remarkable... indeed inspirational. 

Please check in along the journey for reports on Maureen's progress.  And join us in this battle as science is boosted by your prayers to keep Maureen on the road to good health. 






                                                                                                                                                                                                                            













Newest Update

Journal entry by John Graf

It's been about six weeks since Maureen's death. Well meaning friends ask me how I'm doing?  It's a simple question but very difficult to answer. How I'm doing changes hour by hour, morning to night and day by day and not always in a positive direction. I have never been down this road before but the general trend is about what I might have expected.  I believe I can speak for the family on this matter as well.

At Maureen's funeral service celebrating her life, I read a poignant work by Irish philosopher and poet John O'Donohue. His words rang true to me at the time but even more so from my current vantage point. That piece is appended below. It's worth a slow, thoughtful read. O'Donohue hits the nail on the head when he talks about "the silence of absence..."; being "ambushed by grief" and learning "acquaintance with the invisible form of your departed".  

Grief may be different for different people but I believe John O'Donohue captures the essence of the grief felt by loved ones of the deceased.


      For Grief: by John O’Donohue

When you lose someone you love,
Your life becomes strange,
The ground beneath you gets fragile,
Your thoughts make your eyes unsure;
And some dead echo drags your voice down
Where words have no confidence.
Your heart has grown heavy with loss;
And though this loss has wounded others too,
No one knows what has been taken from you
When the silence of absence deepens.

Flickers of guilt kindle regret
For all that was left unsaid or undone.
There are days when you wake up happy;
Again inside the fullness of life,
Until the moment breaks
And you are thrown back
Onto that black tide of loss.
Days when you have your heart back,
You are able to function well
Until in the middle of work or encounter,
Suddenly with no warning,
You are ambushed by grief.

It becomes hard to trust yourself.
All you can depend on now is that
Sorrow will remain faithful to itself.
More than you, it knows its way
And will find the right time
To pull and pull the rope of grief
Until that coiled hill of tears
Has reduced to its last drop.

Gradually, you will learn acquaintance
With the invisible form of your departed,
And when the work of grief is done,
The wound of loss will heal
And you will have learned
To wean your eyes
From that gap in the air
And be able to enter the hearth
In your soul where your loved one
Has awaited your return
All the time.
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