John’s Story

Site created on July 7, 2019

Welcome to our CaringBridge website. We are using it to keep family and friends updated in one place. We appreciate your support and words of hope and encouragement. Thank you for visiting. A little back story on John's Journey...

John was diagnosed with a rare lung disease in 1998 called Broncholitis Obliterans. For 21 years now, he has been defying all odds set against him and blowing away doctors with how resilient he is. His hard-fought fight hasn't been without its multiple hospital stays, scary bouts of pneumonia, good news, bad news and lots of celebrations and tears. There have been times we weren't sure we'd make it this far. Times we weren't sure we'd have him around as long as we have. While we are so thankful that God has allowed him the length of time that he has, we know that without the next step in this journey, his quality of life will not sustain. We don't know when this will all happen, when he will get the call, or what everything looks like when he does. What we do know is that John is a fighter like no other. He's been knocked down, and gotten back up each time with a will to live like I’ve never seen. We know that this next journey will be a tough one. It will test strength, fight, will to live and endurance. If anyone can do it, it's John. We will use this site to update everyone on the progress of his transplant once we get the call. Please feel free to share this with others as well! I have added in the past updates to keep everyone up to speed on where we are at to this point. 

Newest Update

Journal entry by Ashlee Faulkner

One year. 


I don’t even know where to begin. I can’t believe it’s been a year since John’s new journey began. Let me start by saying how incredibly thankful we are for the donor and their family. There isn’t a day that goes by that we don’t think about them, pray for them, thank them, and hope they are healing the best they can. I can’t imagine the pain they have felt, but hope someday we can give them a proper thank you. 


This year has been one for the books. Ups, downs, learning curves and triumphs. Oh, and a pandemic on top of trying to keep him healthy and rejection away! There have been laughs, tears, smiles and fears. John has been incredibly strong through it all. He has pushed through the tough parts of healing, and celebrated the new life he’s able to live. He’s been able to enjoy things again, that he hasn’t in years and fly fishing only took 1 iPhone so far 😉 I’ve watched him walk freely with no oxygen back pack in tow, work around the house and yard without losing his breath, and enjoy living life to the fullest. This man is simply amazing. He’s not complained once about the not so fun parts of adjusting to medicines (30+ daily to start) and has actually spent some well deserved “down time” which as many of you know, has never been a strong suit for him. I’m so incredibly proud. This man is nothing short of amazing. He’s not once taken this second chance for granted, and has vowed to live each day with nothing but gratitude, faith and family. I don’t know how he does it, but he does. And damn does he do it well. 


To everyone who has supported him (and us all) along the way, thank you. Seriously, from the bottom of our hearts, we thank you. We are forever grateful for your outpouring of support, your calls, texts and visits. You are all a big reason why we were able to make it a year. We can’t wait for the memories to come, and the experiences to be had. 


So, as we wrap up the day marking 1 year, we are filled with so much gratitude and love.


Here’s to our amazing man! The one who makes it all possible and makes it so easy to be his cheerleaders! Cheers to 1 year, Dad. And to the many more to come! ❤️❤️

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